The patient's view on quality of life and eating disorders

Centre for Eating Disorders Ursula, Leidschendam, The Netherlands.
International Journal of Eating Disorders (Impact Factor: 3.13). 01/2007; 40(1):13-20. DOI: 10.1002/eat.20338
Source: PubMed


This study investigated the personal views of eating disorder (ED) patients on their quality of life (QOL).
The views of 146 current ED patients and 146 former ED patients on their QOL were studied using a self-report questionnaire. Patients were requested to name the most important aspects of their life and they subsequently rated themselves on these aspects. Qualitative analysis clustered items into meaningful categories.
A sense of belonging was mentioned most often (93.0%) by the participants. Work or education, health and well-being were also mentioned frequently. Furthermore, participants stated a sense of self, disease-specific psychopathology, life skills, leisure activities, a sense of purpose, financial situation, living condition, and pets. Current ED patients more frequently mentioned disease-specific psychopathology than former ED patients. Current ED patients reported poor QOL on most domains, particularly on self-image and well-being. Former ED patients reported better QOL than current ED patients, but ratings were just above average.
The views on QOL of ED patients broadens the scope of relevant domains of QOL. The assessment of these views may be a useful adjunct to the use of standardized QOL measures.

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Available from: Eric van Furth, Oct 29, 2014
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    • "Individuals with eating disorders have substantial impairment in quality of life, worse than those with other psychiatric disorders (e.g., alcohol abuse and somatoform disorder) [11], physical illnesses (e.g., angina and cystic fibrosis) [12], and healthy controls [2,13]. In a study comparing current and former eating disorder patients, current patients were shown to have poor quality of life in most domains, including sense of belonging, work/education, coping with disease-specific psychopathology, leisure activities, life skills, sense of purpose or meaning, financial situation, living condition, and particularly self-image and well-being [14]. Former eating disorder patients had better quality of life than current patients, but their ratings in different domains were only slightly above average. "
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    ABSTRACT: Background Eating disorders are serious mental illnesses that have a significant effect on afflicted individuals’ quality of life. Evidence has shown that they can be improved with treatment. Internet-based interventions are useful in engaging individuals with eating disorders in self-management and treatment. This study aimed primarily to identify the change in quality of life of individuals with disordered eating after participating in an open trial of an Internet-based self-help programme, and compared their quality of life at assessment with that of healthy controls. Factors affecting their quality of life were examined. Secondary outcomes related to symptom improvement were also reported. Methods This study included 194 individuals with disordered eating and 50 healthy controls. The former group was recruited from eating disorder outpatient clinics and treatment units, as well as via information disseminated through various Internet websites, while the healthy controls were recruited from university student newspapers and university campuses. The Medical Outcomes Study Short Form Survey (SF-36v2) was used to assess participants’ quality of life. Other measures were used to assess their symptoms and motivational stages of change to recover from an eating disorder. The Wilcoxon signed ranks test and one-way repeated measures ANOVA were used to identify the change in quality of life of individuals with disordered eating from baseline to 1-, 3- and 6-month follow-ups. The Mann–Whitney U test was employed to compare the difference in quality of life between participants with disordered eating and the healthy controls. Spearman rank order correlations were performed to examine the factors associated with quality of life. Results The participants with disordered eating had significantly poorer quality of life than the healthy controls in both physical and psychological domains. The factors associated with their poor quality of life included dieting behaviour, use of laxatives, severe eating disorder psychopathology, depression and anxiety. Over a six-month follow-up period, a significant number of participants engaged in self-help behaviours using the Internet-based programme. They experienced improvements in their quality of life, eating disorder psychopathology, depression severity, anxiety level and motivational stages of change. Conclusions Internet-based self-help programmes have the potential to enhance quality of life in individuals with disordered eating and could be useful adjuncts to professional treatment.
    Journal of Eating Disorders 03/2013; 1(1). DOI:10.1186/2050-2974-1-9
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    • "Studies have been conducted on patients with depression [2] [4] [20], persons with depression and a chronic somatic illness [28] and with subdepressive symptoms [12]. There are also studies on the disability of persons with personality and eating disorders [8] [22] [27], who, before having treatment in a hospital, function worse than persons suffering from anxiety disorders [26]. The influence of socio-demographic parameters (e.g. "
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    ABSTRACT: Many authors stress the important correlation between disorders and social disability. The aim of the project was the assessment of the occupational and relational social functioning of persons who suffer from different mental disorders. During the 15 months of the project, enrollment was conducted among patients calling in to three outpatient psychiatric clinics in the Lower Silesia region in Poland. The study included persons (n = 185) at the age of 18-54 from five diagnostic groups, according to ICD-10: psychotic disorders (F2), affective disorders (F3), anxiety disorders (F4), eating disorders (F5) and personality disorders (F6). Functioning was evaluated using the Groningen Social Disabilities Schedule (GSDS II), the Social and Occupational Functioning Assessment Scale (SOFAS) and the Global Assessment of Relational Functioning (GARF). The group which had the highest level of functioning with a disability consisted of persons with the F2 diagnosis (1.42, SD = 0.63), whereas persons with anxiety disorders had the lowest disability (0.72, SD = 0.59). The severity of psychopathological symptoms was indeed related to social functioning. There was a significant correlation between general social functioning (the overall GSDS score) and the number of episodes (cor = 0.289; p = 0.001), hospitalizations (cor = 0.352; p < 0.001) and days on leave (cor = 0.393; p < 0.001) for the sample as a whole. The functional disabilities indicated within the majority of patients give strong arguments for introducing the diagnosis and therapy of these disabilities and implementation of them to the standards of psychiatric treatment.
    Advances in Clinical and Experimental Medicine 03/2012; 21(2):215-23. · 1.10 Impact Factor
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    • "Demand for treatment services is growing, along with an urgency to ground new treatments in evidence [8,9]. Treatment outcome measurement in EDs has traditionally focused on changing behavior and symptoms (e.g., reducing purging or restoring a healthy body weight) rather than on broader areas such as role functioning or quality of life, and ED experts have been calling for more holistic approaches to treatment and for broader treatment outcome measurement for more than a decade [10-12]. For example, Miller [11] characterized the traditional approach to EDs treatment outcomes measurement as "too simplistic and narrow in scope," (p. "
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    ABSTRACT: In eating disorders (EDs), treatment outcome measurement has traditionally focused on symptom reduction rather than functioning or quality of life (QoL). The Eating Disorders Quality of Life Scale (EDQLS) was recently developed to allow for measurement of broader outcomes. We examined responsiveness of the EDQLS in a longitudinal multi-site study. The EDQLS and comparator generic QoL scales were collected in person at baseline, and 3 and 6 months from 130 participants (mean age 25.6 years; range 14-60) in 12 treatment programs in four Canadian provinces. Total score differences across the time points and responsiveness were examined using both anchor- and distribution-based methods. 98 (75%) and 85 (65%) responses were received at 3 and 6 months respectively. No statistically significant differences were found between the baseline sample and those lost to follow-up on any measured characteristic. Mean EDQLS total scores increased from 110 (SD = 24) to 124.5 (SD = 29) at 3 months and 129 (SD = 28) at 6 months, and the difference by time was tested using a general linear model (GLM) to account for repeated measurement (p < .001). Responsiveness was good overall (Cohen's d = .61 and .80), and confirmed using anchor methods across 5 levels of self-reported improvement in health status (p < .001). Effect sizes across time were moderate or large for for all age groups. Internal consistency (Chronbach's alpha=.96) held across measurement points and patterns of responsiveness held across subscales. EDQLS responsiveness exceeded that of the Quality of Life Inventory, the Short Form-12 (mental and physical subscales) and was similar to the 16-dimension quality of life scale. The EDQLS is responsive to change in geographically diverse and clinically heterogeneous programs over a relatively short time period in adolescents and adults. It shows promise as an outcome measure for both research and clinical practice.
    Health and Quality of Life Outcomes 08/2010; 8(1):83. DOI:10.1186/1477-7525-8-83 · 2.12 Impact Factor
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