Psychological Well-being and Relationship Outcomes in a Randomized Study of Family-Led Education

University of Arkansas at Little Rock, Little Rock, Arkansas, United States
Archives of General Psychiatry (Impact Factor: 14.48). 09/2006; 63(9):1043-50. DOI: 10.1001/archpsyc.63.9.1043
Source: PubMed


Family members of adults with mental illness often experience emotional distress and strained relationships.
To test the effectiveness of a family-led educational intervention, the Journey of Hope, in improving participants' psychological well-being and relationships with their ill relatives.
A randomized controlled trial using a waiting list design was conducted in the community in 3 southeastern Louisiana cities.
A total of 462 family members of adults with mental illness participated in the study, with 231 randomly assigned to immediate receipt of the Journey of Hope course and 231 assigned to a 9-month course waiting list. Intervention The Journey of Hope intervention consisted of 8 modules of education on the etiology and treatment of mental illness, problem-solving and communication skills training, and family support.
Participants' psychological well-being and relationships with their ill relatives were assessed at study enrollment, 3 months after enrollment (at course termination), and 8 months after enrollment (6 months after course termination). Mixed-effects random regression analysis was used to predict the likelihood of decreased depressive symptoms, increased vitality, and overall mental health, and improved relationship ratings.
Intervention group participants reported fewer depressive symptoms, greater emotional role functioning and vitality, and fewer negative views of their relationships with their ill relatives compared with control group participants. These improved outcomes were maintained over time and were significant (P<.05 for all) even when controlling for participant demographic and relative clinical characteristics.
Results show that family-led educational interventions are effective in improving participants' psychological well-being and views of their relationships with ill relatives.

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    • "Though schizophrenia affects the whole family, research predominantly identifies the issues of parents and spouses of the patients and a major proportion of participants in psychosocial interventions on caregivers are from these two groups (Chien et al., 2006; Pickett-Schenk et al., 2006; Shor & Birnbaum, 2012; Stephens et al., 2011; Szmukler et al., 2003). The studies on siblings of persons with schizophrenia (SOPS) show that they are also negatively affected by the illness and have suggested that there is a need for psychosocial interventions (Friedrich et al., 1999, 2008; Schmid et al., 2009; Sin et al., 2012). "
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    ABSTRACT: There is a lack of studies on siblings of persons with schizophrenia (SOPS) in Asia. This study aims to explore the needs of SOPS in India. 15 SOPS participated in this qualitative explorative study. All the interviews were audio recorded and later transcribed. Data analysis was carried out using General Inductive Approach. Five themes emerged from the data: managing illness or socio-occupational functioning; follow up services; informational needs; personal needs; and miscellaneous needs. SOPS in India have some distinctive needs. Identifying these needs might help in developing and designing specific psychosocial interventions for better management. Copyright © 2015 Elsevier B.V. All rights reserved.
    Asian Journal of Psychiatry 07/2015; DOI:10.1016/j.ajp.2015.07.011
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    • "However, it was noted that in the absence of other primary caregivers, they play an important role in caring for their affected sibling.11,12) In this context, it is important to note that many psychosocial intervention studies with caregivers of psychosis have shown that the number of siblings who participated in the interventions are less compared to the parent and spouse caregivers.13,14,15,16,17,18,19,20,21,22) "
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    ABSTRACT: Research on caregivers of psychosis has predominantly focused on parents and spouses. Issues related to siblings of persons with psychosis (SOPP) are yet to be evaluated comprehensively. Like parents and spouses, SOPP also share the caregiver burden and have their own issues and needs. This systematic descriptive review aims to identify the types of needs of SOPP in the published literature and gives implications for further practice and research. The primary data search was carried out with predefined protocol in PubMed database and an additional hand search was done in EBSCOhost, ProQuest, Scopus, and PsychINFO. All the searches yielded a total of 862 titles. After screening for necessary inclusion criteria, seven studies were included in the final review. The results are discussed under six major themes that emerged from this review. Six out of seven studies highlighted the need for information on siblings' illness and participation in caregiver support group. Other important needs were illness management or rehabilitation needs; help in managing their own psychosocial issues; treatment related informational needs; and inclusion in treatment process. The socio-demographic details of these studies showed that majority of the participants were female siblings of Caucasian or white British ethnicity and from developed countries. SOPP predominantly have specific needs such as informational and support group needs, which are different in the priority of other primary caregiver needs. Paucity of literature from developing countries and the limitations of the existing studies warrant further systematic research.
    Clinical Psychopharmacology and Neuroscience 08/2014; 12(2):111-23. DOI:10.9758/cpn.2014.12.2.111
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    • "Despite longstanding and robust literature supporting the efficacy of family psychoeducation (FPE), treatments that have demonstrated improved outcomes such as reduction in relapses and hospitalizations for persons with psychiatric illness (e.g., Pitschel-Walz, Leucht, Bauml, Kissling, & Engel, 2001; Miklowitz, George, Richards, Simoneau, & Suddath, 2003; McFarlane et al., 1995), low utilization of these approaches across a range of mental health settings persists. Studies examining family-led family education and support show promising results in increasing the relative's knowledge, enhancing empowerment, and decreasing the relative's subjective burden (e.g., Dixon et al., 2004, Pickett-Schenk et al., 2006). Despite the focus of these interventions on the family member, Solomon, Draine, Mannion, & Meisel (1996a) found improvement in the consumer's attitude toward medication adherence. "
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    ABSTRACT: Family involvement in the care of persons with psychiatric illness is important for recovery-oriented comprehensive mental health services; however, family involvement infrequently occurs. The Department of Veterans Affairs Office of Mental Health Services has sponsored Family Forum II to provide a broad intervention framework for family involvement in the care of persons with psychiatric illness. This article presents guidance provided by Family Forum II. Services highlighted include family consultation, family education, and family psychoeducation; and an intervention framework is presented. Several dimensions of fostering family involvement are emphasized as vital to the process of engagement in meaningful services. An intervention framework for family involvement enables consumers, family members, providers, and administrators to navigate and cultivate family service choices in a family-friendly agency.
    American Journal of Psychiatric Rehabilitation 01/2012; 15(1):5-25. DOI:10.1080/15487768.2012.655223
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