The French proposal for a health identification number.
ABSTRACT The French ministry of Health is setting up the personal medical record (PMR or DMP for Dossier Medical Personnel in French). This innovating tool is highly expected and will be extremely useful for the therapeutic follow-up as well as for epidemiological studies on which public health policies are based. Therefore the currently planned identifying process should prevent any epidemiological use of these data. Numerous scientific organisations have alerted government powers about the threat that this impairment represents, and they wish to promote some secure procedures that exist, which have already proved their efficiency at the national and international level.
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ABSTRACT: The main objective of INFORARE project is to organize the gathering, assessment and sharing of medical information between sickle-cell anaemia patient and the health workforce. The method is based on the: evaluation of the sickle-cell anaemia patients’ acceptability of the familial data collection; centralised management of medical files which have been rendered anonymous; proposition of an identification model for sickle-cell anaemia patients and the evaluation of first the feasibility of the identification data collection, second the data linkage quality.IRBM 05/2010; 31(2):127-130. · 0.38 Impact Factor