Article

Can rehabilitation in the home setting reduce the burden of care for the next-of-kin of stroke victims?

University of Gothenburg, Goeteborg, Västra Götaland, Sweden
Journal of Rehabilitation Medicine (Impact Factor: 1.9). 02/2007; 39(1):27-32. DOI: 10.2340/16501977-0001
Source: PubMed

ABSTRACT More evidence of the efficacy of caregiver interventions is needed. The aim of this study was to evaluate whether counselling in the home setting reduces the caregiver burden.
Thirty-six patients after stroke, median age 53 years, with a close family member, were selected for an evaluation of the burden of care and 35 participated. They were part of a randomized controlled trial, comparing rehabilitation in the home setting with outpatient rehabilitation. In the home setting, counselling about the stroke and its consequences was included. Assessments with the Caregiver Burden scale were made at 3 weeks, 3 months and one year after discharge.
The burden of the 2 groups did not differ. After the intervention, there was a tendency to a lower burden for the home setting. The burden for the home setting was then unchanged from 3 weeks to 1 year, while outpatient rehabilitation showed a reduced burden over time. For the home setting, significant correlations to activity level were seen after the intervention.
A positive effect of counselling was seen, as the home setting burden tends to be lower after the intervention, while outpatient rehabilitation seems to adjust with time. The results suggest that counselling reduces burden and the remaining burden is associated with the patient's ability.

Download full-text

Full-text

Available from: Katharina Stibrant Sunnerhagen, Jun 26, 2015
0 Followers
 · 
86 Views
  • Source
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: ABSTRACT The general aim of this thesis was to better understand and describe the experiences of occupations in the context of daily life and the meaning of actions in different places (training apartment, rehabilitation setting, home and workplace) for persons of working age with acquired brain injury (ABI) during a rehabilitationprocess ,The aim of the study I was to investigate how persons with acquired brain injury experienced their 1-week stay in an apartment fitted with electronic aids to daily living (EADL). Eleven participants with acquired brain injury (of working age) were interviewed on the last day of their stay. A phenomenological method was used during analysis. The findings are presented in a meaning structure comprising 4 main characteristics: Plunging intothe EADL-equipped environment, landingand feeling comfortable with the new environment, incorporating the “new” in daily activities, and taking off for the future. ,The aim of study II was to identify what characterized the lived experience of memory impairment in daily occupations during the first year after acquired brain injury. Four participants, aged 22-61, were interviewed over four occasions during the first year after acquiring a brain injury. A phenomenological method was used during analysis. The findings are presented in a meaning structure comprising 4 main characteristics that reflects the temporal process of rehabilitation over a year: 1) A chaotic life-world,2 ) struggling for a coherent doing in new contexts, 3) conscious strategies in new contexts, and 4) achieving new habits. ,The aim of study III was to describe the meaning of actions in different places during one year of rehabilitation after stroke. Qualitative interviews with seven persons, aged 42-61, done over the course of a year were analyzed using a grounded theory method. Seven categories emerged and were presented in overlapping phases as: 1) Workplace in mind, 2)experiences at home enabling reflection,3) rehabilitation setting creates uncertainty, 4) retrieving inspiration