A consultation with Canadian rural women with breast cancer
ABSTRACT Relatively little research has been carried out on the health and supportive care needs of rural women living with breast cancer. In this study, results from a Canadian focus group study are used to highlight issues of importance to rural women.
A total of 276 rural women with breast cancer divided into 17 focus groups participated in the study conducted across Canada. A standardized protocol for discussion was employed. Issues of access to information, support and services were discussed, with women describing their experiences in trying to find appropriate programmes and services.
The major theme identified through analysis of qualitative data was 'becoming aware of and/or gaining access to health care information, support and services.' Other major themes included: (1) dealing with isolation; (2) having to travel; (3) feeling the financial burden and (4) coping with changing work.
Rural women with breast cancer have supportive care challenges related to their circumstances. A series of recommendations were generated through the consultation process which are contributing to the development of a national strategy focusing on the development and extension of programmes for rural women with breast cancer. Although the research on the project was not to specified standards, and suffered from less attention than community capacity building and advocacy, it proved to be of worth and revealed potential benefits from collaborations between researchers and community organizations.
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ABSTRACT: This report is the result of a planning grant exercise which is detailed in the lay summary for the grant that supported it, below: Recent immigrant older adults and some visible minorities who have aged here—together known as ethnic minority older adults (EMOA)—both experience health inequities in Canada. These are primarily related to difficulties with the complex process of accessing suitable care. However, Canadian research on the topic is extremely fragmented and hard to find, and knowledge users (KUs) who design policy and programs do not have the evidence they need to help them to address access barriers experienced by EMOA. Effort is needed to consolidate existing evidence and design research that fills knowledge gaps with respect to access so as to generate a decision-making tool that can guide KUs in their decisions across different health and social care contexts. Our team of 13 multidisciplinary academics and multisectoral KUs is uniquely positioned to meet this challenge. First, however, it is essential that we convene to ensure that we share a common understanding of ‘access’ and the requirements of CIHR’s ‘Partnership for Health System Improvement’ (CIHR) competition that we will target to complete this work. With the proposed planning grant, students hired by each pair of academics and knowledge users in six sites from British Columbia to Newfoundland will review the EMOA literature on topics of interest to the KU on their team. Each will produce topical reports identifying the different dimensions of access that are evident in those studies. These will inform a presentation that the KUs will make about their interests and understanding of access at a 1.5 day face-to-face meeting of team members in Vancouver in June 2014. They will also be consolidated into a single report that will form the basis of discussion at the Vancouver meeting and a peer-reviewed publication. The meeting will provide an opportunity to consolidate our understanding of access and its relationship to our KUs interests and to identify our strategy for applying for funding in Fall 2014.
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ABSTRACT: The paper reviews published studies focused on disparities in receipt of cancer treatments and supportive care services in countries where cancer care is free at the point of access. We map these studies in terms of the equity stratifiers they examined, the countries in which they took place, and the care settings and cancer populations they investigated. Based on this map, we reflect on patterns of scholarly attention to equity and disparity in cancer care. We then consider conceptual challenges and opportunities in the field, including how treatment disparities are defined, how equity stratifiers are defined and conceptualized and how disparities are explained, with special attention to the challenge of psychosocial explanations.Supportive Care Cancer 08/2014; 22(11). DOI:10.1007/s00520-014-2348-3 · 2.50 Impact Factor
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ABSTRACT: To review the empirical qualitative literature on cancer survivors' experiences of the return to work process in order to develop strategies for health and vocational professionals to facilitate return to work.Journal of Cancer Survivorship 07/2014; 8(4). DOI:10.1007/s11764-014-0377-z · 3.29 Impact Factor