Do we really need palliative care for severe dementia patients?

Oslo University Hospital, Kristiania (historical), Oslo, Norway
Age and Ageing (Impact Factor: 3.64). 10/2007; 36(5):584-7. DOI: 10.1093/ageing/afm035
Source: PubMed
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    • "Retrospective case note audit Aminoff et al. 2005 [9] Dying Dementia Patients: Too much suffering, too little palliation Prospective observational Kristjanson et al. 2006 [12] Palliative care and support for people with neurodegenerative conditions and their caregivers Descriptive survey Wollin et al. 2006 [17] Supportive and palliative care needs identified by multiple sclerosis patients and their families Semistructured interviews Aminoff et al. 2006 [10] Their last 6 months: suffering and survival of end-stage dementia patients Prospective observational Hudson et al. 2006 [19] Would people with Parkinson's disease benefit from palliative care? Qualitative semi-structured interviews and analysis Neatherlin JS 2006 [21] End-of-Life Care Concepts in Journal of Neuroscience Nursing Systematic review Mitchell et al. 2007 [20] Hospice Care for Patients with Dementia Retrospective review of database Kumpfel et al. 2007 [13] Palliative Care in patients with severe multiple sclerosis: two case reports and a survey among German MS neurologists Case report and cross-sectional questionnaire survey Turner-Stokes et al. 2007 [14] From diagnosis to death: exploring the interface between neurology, rehabilitation and palliative care in managing people with long-term neurological conditions Cross-sectional postal survey Rozzini et al. 2007 [11] Do we really need palliative care for severe dementia patients? Prospective observational "
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    ABSTRACT: This review assesses the current opinion towards early palliative care in neurology and discusses the existing evidence base. A comprehensive literature search resulted in 714 publications with 53 being directly relevant to the scope of this review. The current literature reflects primarily expert opinion and describes a growing interest in the early introduction of palliative principles into neurological care. Early initiation of palliative interventions has the potential to improve quality of life, enhance symptom management and assist in advance care planning. Further data is required to determine whether this shift in philosophy has a positive impact on patient care.
    The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques 06/2009; 36(3):296-302. DOI:10.1017/S0317167100007010 · 1.53 Impact Factor
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    ABSTRACT: i ABSTRACT This thesis explores nurses' conceptualisation of dementia and discusses the relationship between these understandings and nursing practice. Using the reflexive sociological approach of French scholar Pierre Bourdieu, the study seeks to advance practice through the enhancement of theoretical understandings. Data were collected in a range of inpatient clinical areas in Scotland using focus groups, individual interviews and observation. A range of nurses contributed, reflecting views and understandings from inpatient areas run by both general medical and mental health services. Nurses were found to conceptualise dementia in four main ways; as a disease, as a memory problem, as confusion and finally as a journey. These four conceptualisations are addressed in turn and the ways in which they inform and relate to practice are discussed. Limitations to practice arising from the nurses conceptualisations are also highlighted. Dominant approaches to care are outlined throughout the thesis, with the medical model, individualised care, person-centred dementia care and palliative care all being discussed in light of the nurses' understandings of dementia.
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    ABSTRACT: Aminoff suffering syndrome (ASS) in advanced dementia is the new proposed term for a pathological symptoma-tology and entity that is characterized by a high Mini Suffering State Examination (MSSE) scale score, <6 months survival, irreversible and intractable aggravation of suffering and medical condition until demise. This paper proffers a new, alternative approach and setting for end-stage dementia (ESD) patients with ASS that could pertain to the Israeli setting, and could possibly also be applicable in other countries. Short hospitalization periods of approximately 1 month, and treatment in Relief of Suffering Units may be a new, palliative approach and present a possible solution for cop-ing with the horrendous burden of the anguish of end-of-life dementia patients, their families, and the medical and nursing staff.
    The Open Geriatric Medicine Journal 12/2008; 1(1):29-32. DOI:10.2174/1874827900801010029
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