Conducting End-of-Life Studies in Pediatric Oncology

St. Jude Children's Research Hospital, Memphis, Tennessee 38105-2794, USA.
Western Journal of Nursing Research (Impact Factor: 1.03). 07/2007; 29(4):448-65. DOI: 10.1177/0193945906295533
Source: PubMed


Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and complete clinically useful pediatric end-of-life studies in oncology. The article describes specific peer-review and methodological challenges and links those to evidence-based solutions. The challenges and solutions described in this article are from eight end-of-life studies involving pediatric oncology patients. It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents.

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