Coping and caring: Support for family caregivers of stroke survivors
ABSTRACT This study examines the physical and emotional burden experienced by caregivers of stroke survivors, compared with caregivers of patients having neurological diseases.
Stroke survivors have residual neurological impairment, which requires long-term support and care. Anxiety, depression and poor physical health are common sequelae among family caregivers of stroke survivors. There is a reasonably consistent association between patients' levels of disability and emotional state and the emotional distress of their caregivers.
A convenience sample of 47 families was recruited: of the 47 families, 23 had a member who suffered from stroke and 24 had a member with neurological disease.
Two interviews were conducted at three and six months after the occurrence of the index stroke or neurological disease.
When the two groups of caregivers were compared for anxiety, depression and physical health status after care giving, the caregivers of stroke patients demonstrated higher levels of anxiety and depression than their counterparts in the neurological disease group (p < 0.001). However, there was no significant difference in physical health status between the two groups. Educational attainment, patient group and physical and cognitive impairment of the patients were the predictors of anxiety and the depressive status of the caregivers, while their age and level of depression contributed significantly to their physical health status.
The physical and emotional well-being of two groups of family caregivers in a neurosurgical unit were compared in the caring context. The caregivers of stroke survivors are at a greater risk of developing poor physical and emotional health than the caregivers of patients having neurological diseases.
The results illustrated that enhanced discharge planning and nurse follow-up sessions are considered essential in maintaining the well-being of the stroke caregivers and bridging the gap between the hospital and the community.
Full-textDOI: · Available from: Frances Kam Yuet Wong, Sep 11, 2014
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ABSTRACT: Utilising an interpretive descriptive approach, this qualitative study explores and identifies how spouses and partners of stroke survivors sustain their own health and wellness. Recent literature has mainly focused on identifying psychological coping strategies thought to assist in adapting to the caring role. As a consequence, there is limited knowledge regarding the experiences of how spouses and partners attend to their own health and well-being. This study aimed to explore how spouses and partners sustain their own health and wellness while supporting a stroke survivor. Purposive and theoretical sampling strategies were used to guide recruitment. Semi-structured interviews were carried out with seven spouses and partners who were living with, and supporting a stroke survivor. A central theme with three sub-themes became apparent when examining spouses and partners’ experiences. The theme of Meeting Needs connects the three sub-themes, in that spouses’ and partners’ health and wellness appeared to be influenced by and intertwined with attending to the stroke survivors’ needs. The context of Being in a Relationship provided a rationale for prioritising the stroke survivors’ needs and was the first sub-theme. Secondly, Living Both Lives explains how spouses/partners were busy thinking and attending primarily to the stroke survivor’s daily requirements whilst also trying to attend their own needs. The third sub-theme, Uncertain Health encompasses how a spouse’s and partner’s well-being is connected to the stroke survivors’ health and their future concerns about being able to provide care if they themselves become sick. Therefore, these circumstances shaped their ability to attend to their own health and well-being. Whilst attending to the stroke survivor was at the forefront of their minds there were some strategies which spouses/partners utilised to support their own health and well-being. These were: creating time and space for themselves; talking with others; and comparing own lives against others who were seen to be worse or better off, in order to support their own emotional well-being. This study found that the participants struggled to prioritise and attend to their own health and well-being, as most of them was busy primarily attending to the stroke survivor’s needs. Overall, results suggest that exploring what spouses/partners think and do within the relationship could be valuable for health practitioners. Given that it is the intimate nature of being in a relationship that is the foundation for spouses/partners supporting the stroke survivor, it could also be important for services and health professionals to consider the well-being and needs of the couple, not just the stroke survivor.
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ABSTRACT: Caregiver burden differs according to the amount of care, but no study has really focused on that point. This study compares the evolution of burden of two groups of caregivers of people with a recent stroke who returned home after discharge from two different types of health care facilities. Burden was assessed at 3 weeks and 3 and 6 months after discharge. The two groups of people with stroke and their caregivers were recruited from acute care (n = 69) and rehabilitation facilities (n = 89). Caregivers completed a questionnaire with three dimensions. In addition to sociodemographic characteristics, we assessed variables pertaining to the clinical, physical and cognitive functioning of the people with stroke. Differences in burden were noted. The best predictors of burden were the caregivers' characteristics, i.e. gender (female), occupation (retired), schooling (low), age (older) and hours of care given, and the stroke survivors' characteristics, i.e. depressive symptoms, poor motor function (leg), verbal comprehension deficits, difficulty walking and neurological deficits. These results reinforce the view that services (information, training and support) should be tailored to the needs of caregivers, depending on whether or not the recipient of care has received rehabilitation services.Cerebrovascular Diseases 04/2009; 27(5):456-64. DOI:10.1159/000210092 · 3.70 Impact Factor