Article

Systematic review of information and support interventions for caregivers of people with dementia

Department of Health Sciences, University of York, York, UK.
BMC Geriatrics (Impact Factor: 2). 02/2007; 7:18. DOI: 10.1186/1471-2318-7-18
Source: PubMed

ABSTRACT Dementia is an important health and social care problem and is one of the main causes of disability in later life. The number of families affected by dementia will dramatically increase over the next five decades. Despite the implications for health and social care services in the future, the overwhelming majority of care for people with dementia takes place away from health care settings. Providing informal care for someone with dementia can be psychologically, physically and financially expensive and a range of health service interventions aimed at supporting and providing information to these carers has developed to help carers meet these demands. This review examines whether information and support interventions improve the quality of life of people caring for someone with dementia.
A systematic review examining evidence from randomised controlled trials in which technology, individualised or group-based interventions built around the provision of support and/or information were evaluated.
Forty-four studies were included in the review. Controlling for the quality of the evidence, we found statistically significant evidence that group-based supportive interventions impact positively on psychological morbidity. However, whilst the improvement was unlikely to be due to chance, the clinical significance of this finding should be interpreted tentatively, due to the difficulties in interpreting the standardised mean difference as a measure of effect and the complex aetiology of depression. No evidence was found for the effectiveness of any other form of intervention on a range of physical and psychological health outcomes.
There is little evidence that interventions aimed at supporting and/or providing information to carers of people with dementia are uniformly effective. There is a pressing need to ensure that supportive interventions at the development stage are accompanied by good quality randomised evaluations in which outcomes that are important to clinicians and carers are measured.

0 Followers
 · 
154 Views
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Educational initiatives for informal caregivers have proved efficient at reducing some of their symptoms, consequence of their involvement in care giving. However, more progress must be made in terms of the design of more successful interventions. Randomized clinical trial to test the efficiency of an Education Program for Primary Informal Caregivers of Hospitalized Dependent Patients in relation to their burden, mental and physical health, and care related knowledge. Cluster Randomized Trial. 151 participants, primary caregivers of hospitalized, dependent patients, carried out from February 2009 to March 2010. They were assigned at random to two groups: one received an intensive educational program (n = 78), and the other just a generic speech (n = 73). The degree of burden of caregivers was recorded (Zarit Test), as well as their physical and mental health (SF12) and their knowledge of caregiving, before, immediately, after and one and a half months after the intervention. These analyses were carried out according to the Generalized Estimated Equations Method, in order to assess any possible improvements. Participants´ burden did not improve, as measured by Zarit Test (p = 0,338), nor did their physical (p = 0,917) or mental health (p = 0,345). However there was an improvement in their hygiene caregiving (p = 0,001) and mobility care giving (p = 0,001). Caregivers found useful the education program, providing them with an informal support group. Interventions need to be longer and more customized as well as adapted to specific demands. There is a lack of validated questionnaires to assess improvements in care knowledge. There is a need to develop programs that contemplate continuity of care from primary to specialized caregiving. Cluster randomized trial: ESCPD2010.
    BMC Nursing 01/2015; 14(1):5. DOI:10.1186/s12912-015-0055-0
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Η Symbiosis αποτελεί μια καινοτόμα προσέγγιση με στόχο τη διευκόλυνση, κατανόηση και ικανοποίηση των αναγκών όλης της κοινότητας που επηρεάζεται από τη νόσο Alzheimer (ασθενείς, περιθάλποντες, ιατροί). Στόχος είναι η ενεργοποίηση των πνευματικών και φυσικών δεξιοτήτων των ασθενών ενισχύοντάς τους παράλληλα, την αίσθηση αυτονομίας και αυτοπεποίθησης. Η πορεία της αλληλεπίδρασης με τη Symbiosis καταγράφεται, προκειμένου να ενημερώνονται οι συνδεδεμένοι με τον ασθενή περιθάλποντες και γιατροί.
    6th Electrical and Computer Engineering Students Conference ECESCON 6; 04/2013
  • [Show abstract] [Hide abstract]
    ABSTRACT: Despite research demonstrating the psychological burden associated with caregiving, there is limited information regarding the real rates of clinical depression among non-professional caregivers (NCs) of dependent patients. The goals of the current study are (a) to report the prevalence of Major Depressive Episodes (MDEs) and the frequency of depressive symptoms in NCs from Galicia (Spain) and (b) to examine the relationship between MDEs and characteristics of caregivers, care recipients, and the care situation. A sample of 504 NCs providing care to persons with all kinds of disorders that result in dependency was randomly selected, and the occurrence of MDEs was assessed by trained interviewers who applied the Structured Clinical Interview for DSM-IV Axis I Disorders-Clinician Version (SCID-CV). Overall, 8.9% of NCs met the criteria for a current MDE. Sleep problems, diminished ability to think or concentrate, and depressed mood were the clinical depressive symptoms most frequently reported. MDEs were significantly more common among NCs older than 55 years old (odds ratio [OR]=1.96; 95% confidence interval [CI]: 1.02–3.75) and those who were unemployed (OR=3.43; 95% CI 1.02–11.48). The findings highlight the magnitude of major depression in this population.
    Psychiatry Research 01/2015; 226(1). DOI:10.1016/j.psychres.2014.12.066 · 2.68 Impact Factor

Full-text (4 Sources)

Download
50 Downloads
Available from
May 23, 2014