HIV denial in the Internet era.

Department of Epidemiology, University of Iowa College of Public Health, Iowa City, Iowa, United States of America.
PLoS Medicine (Impact Factor: 14). 09/2007; 4(8):e256. DOI: 10.1371/journal.pmed.0040256
Source: PubMed

ABSTRACT The Internet has served as a fertile and un-refereed medium to spread HIV denialist beliefs, argue the authors.

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    ABSTRACT: This paper explores the boundary work undertaken by HIV scientists and activists against the journal Medical Hypotheses over its lack of peer review. Their action was sparked by the publication of an article by Peter Duesberg claiming that HIV does not cause AIDS and that antiretrovirals do more harm than good. Precisely because such 'AIDS denialism' can undermine HIV prevention and treatment interventions, as was demonstrably the case in South Africa under President Mbeki, the episode raised questions about when, in the interests of public health, the boundaries of legitimate scientific debate may be drawn to exclude unreasonable and unscholarly arguments. The paper argues that normative concerns motivated the complaints which resulted in the publisher withdrawing Duesberg's paper and imposing editorial policy changes on Medical Hypotheses. Concerns were raised about the implications for academic freedom of this boundary work in defence of peer review as a core practice in science. The paper concludes, however, that Duesberg's freedom to write what he likes remains intact, but that if he wants his work to carry the imprimatur of science, he now has to subject it to peer review.
    Sociology of Health & Illness 02/2011; 33(4):507-21. · 1.88 Impact Factor
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    ABSTRACT: More than 34 million people in the world are living with HIV/AIDS. Each year there are nearly three million new HIV infections and nearly two million AIDS-related deaths. In the face of these staggering statistics, there is a vocal group of individuals who deny reality and claim that HIV is harmless or may not even exist at all. Mirroring the AIDS pandemic itself, AIDS denialism is a threat to public health. AIDS denialism propagates the views of a few rogue scientists through press releases, social media, and a significant presence on the Internet. AIDS Denialists aim to undermine HIV testing, prevention, and treatment. Most tragic has been the adoption of AIDS Denialist views by public officials, perhaps none more infamous than former President of South Africa Thabo Mbeki. This article examines the psychology of AIDS denialism, focusing on its emergence from the earliest days of AIDS and its grounding in conspiracy thinking and medical mistrust. The article also describes the tactics and rhetoric of AIDS denialism and those who are most vulnerable to AIDS Denialist claims. Recommendations are offered for countering AIDS denialism by exposing its fake experts and baseless claims. (PsycINFO Database Record (c) 2014 APA, all rights reserved)
    European Psychologist 01/2014; 19(1):13. · 1.31 Impact Factor
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    ABSTRACT: Background: The rise of social media proved to be a fertile ground for the expansion of the acquired immune deficiency syndrome (AIDS)-denialist movement (in the form of online communities). While there is substantial literature devoted to disproving AIDS-denialist views, there is a lack of studies exploring AIDS-denialists online communities that interact with an external environment. Objective: We explored three research areas: (1) reasons for newcomers to come to an AIDS-denialist community, (2) the patterns of interactions of the community with the newcomers, and (3) rhetorical strategies that denialists use for persuasion in the veracity of their views. Methods: We studied the largest AIDS-denialist community on one of the most popular social networking services in Russia. We used netnography as a method for collecting data for qualitative analysis and observed the community for 9 months (at least 2-3 times a week). While doing netnography, we periodically downloaded community discussions. In total, we downloaded 4821 posts and comments for analysis. Grounded theory approach was used for data analysis. Results: Most users came to the community for the following reasons: their stories did not fit the unitary picture of AIDS disease progression translated by popular medical discourse, health problems, concern about HIV-positive tests, and desire to dissuade community members from false AIDS beliefs. On the basis of strength in AIDS-denialist beliefs, we constructed a typology of the newcomers consisting of three ideal-typical groups: (1) convinced: those who already had become denialists before coming to the group, (2) doubters: those who were undecided about the truth of either human immunodeficiency virus (HIV) science theory or AIDS-denialist theory, and (3) orthodox: those who openly held HIV science views. Reception of a newcomer mainly depended on the newcomer’s belief status. Reception was very warm for the convinced, cold or slightly hostile for the doubters, and extremely hostile or derisive for the orthodox. We identified seven main rhetorical strategies of persuasion used by the denialists on the “undecided”. Conclusions: Contrary to the widespread public health depiction of AIDS denialists as totally irrational, our study suggests that some of those who become AIDS denialists have sufficiently reasonable grounds to suspect that “something is wrong” with scientific theory, because their personal experience contradicts the unitary picture of AIDS disease progression. Odd and inexplicable practices of some AIDS centers only fuel these people’s suspicions. We can conclude that public health practitioners’ practices may play a role in generating AIDS-denialist sentiments. In interactions with the newcomers, the experienced community members highlighted the importance of personal autonomy and freedom of choice in decision making consistent with the consumerist ideology of health care. The study findings suggest that health care workers should change a one-size-fits-all mode of counseling for a more complex and patient-tailored approach, allowing for diversity of disease progression scenarios and scientific uncertainty
    Journal of Medical Internet Research 11/2014; 16(11):e261. · 4.67 Impact Factor

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