Quality of Life as reported by school children and their parents: a cross-sectional survey

The Norwegian University of Technology and Science (NTNU), Regional Centre of Child and Adolescent Mental Health MTFS N-7489, Dept, of Child and Adolescent Psychiatry St, Olav Hospital, 7000 Trondheim, Norway.
Health and Quality of Life Outcomes (Impact Factor: 2.1). 05/2008; 6:34. DOI: 10.1186/1477-7525-6-34
Source: PubMed

ABSTRACT Comprehensive evidence exists regarding the discrepancy between children's reports and parents' by proxy reports on emotional and behavioural problems. However, little is yet known about factors influencing the extent to which child self- and parent by proxy reports differ in respect of child Quality of Life (QoL). The aim of the study was to investigate the degree of discrepancy between child and parent by proxy reports as measured by two different QoL instruments.
A representative Norwegian sample of 1997 school children aged 8-16 years, and their parents were studied using the Inventory of Life Quality (ILC) and the 'Kinder Lebensqualität Fragebogen' (KINDL). Child and parent reports were compared by t-test, and correlations were calculated by Pearson product moment coefficient. Psychometric aspects were examined in regard to both translated QoL instruments (internal consistency by Cronbach's alpha and test-retest reliability by intraclass correlation coefficients).
Parents evaluated the QoL of their children significantly more positively than did the children. Correlations between mother-child and father-child reports were significant (p < 0.01) and similar but low to moderate (r = 0.32; and r = 0.30, respectively, for the KINDL, and r = 0.30 and r = 0.26, respectively, for the ILC). Mother and father reports correlated moderately highly (r = 0.54 and r = 0.61 for the KINDL and ILC, respectively). No significant differences between correlations of mother-daughter/son and father-daughter/son pairs in regard to reported child QoL were observed on either of the two instruments.
In the present general population sample, parents reported higher child QoL than did their children. Concordance between child and parent by proxy report was low to moderate. The level of agreement between mothers and fathers in regard to their child's QoL was moderate. No significant impact of parent and child gender in regard to agreement in ratings of child QoL was found. Both the child and parent versions of the Norwegian translations of the KINDL and ILC can be used in surveys of community populations, but in regard to the self-report of 9-10 years old children, only the KINDL total QoL scale or the ILC are recommended.

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Available from: Fritz Mattejat, Aug 16, 2015
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    • "Thus, it is very important to know how well we can trust in such " proxy " reports. In the general population, research comparing child and parent proxy reports showed that parents evaluated their child's well-being and QOL as better than did the children themselves on most life domains (Ellert et al. 2011; Jozefiak et al. 2008; Upton et al. 2008). Further, parents in the general population reported only few changes related to one domain (school) of their children's well-being and QOL over a 6-month period, while the children reported changes in many life domains such as family, emotional well-being, self-esteem, and school (Jozefiak et al. 2009). "
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    • "The ILC was translated into Norwegian according to international standards and approved by the original authors. The Norwegian version of the ILC for adolescents (aged 12e18 years and may be used up to 20 years) and their parents have shown satisfactory reliability (Jozefiak et al., 2008, 2010). Both adolescent (self-report) and parent (proxy report for children and adolescents from 4 to 20 years) versions were used in the present study. "
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    • "This measure uses the format of paired options leading to forced responses to avoid neutral or extreme scoring; it also avoids overt positive and negative phrasing of the items and eliminates the emotional burden that may result from negative formulation [24]. We accepted both mothers and fathers as proxies since their evaluations have been reported to be similar and interchangeable [24] [30]. "
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