The Power and the Promise: Working With Communities to Analyze Data, Interpret Findings, and Get to Outcomes

Department of Family Medicine and Community Health, A3-150 Benedict Bldg, University of Massachusetts Medical School, Worcester, MA 01655, USA.
American Journal of Public Health (Impact Factor: 4.55). 09/2008; 98(8):1407-17. DOI: 10.2105/AJPH.2007.113571
Source: PubMed


Although the intent of community-based participatory research (CBPR) is to include community voices in all phases of a research initiative, community partners appear less frequently engaged in data analysis and interpretation than in other research phases. Using 4 brief case studies, each with a different data collection methodology, we provide examples of how community members participated in data analysis, interpretation, or both, thereby strengthening community capacity and providing unique insight. The roles and skills of the community and academic partners were different from but complementary to each other. We suggest that including community partners in data analysis and interpretation, while lengthening project time, enriches insights and findings and consequently should be a focus of the next generation of CBPR initiatives.

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    • "Politically, public involvement provides a voice for 33 disadvantaged social groups (Beresford, 2005; Boote et al., 2010) as well as a more democratic 34 decision-making process with greater accountability (Florin and Dixon, 2004). Furthermore, 35 public involvement can increase the relevance, appropriateness and quality of health and 36 social care research (Cotterell, 2007; Cashman et al., 2008). "
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    • "The bi-national CBPR partnership This study was conducted by a bi-national CBPR partnership comprised of lay community members , including Guatemalan gay men and immigrant Latino gay and bisexual men living in the USA, and organizational representatives, business owners and academic researchers from both Guatemala and North Carolina. Blending the lived experiences of community members; the experiences of organizational representatives based in ongoing service provision; and sound science have the potential to develop more informed understandings of health-related phenomena and thus produce interventions that are more relevant, more culturally congruent, more likely to be adopted and maintained over time and more likely to be successful (Israel et al., 1998; Eng et al., 2005; Cashman et al., 2008; Wallerstein et al., 2008; Rhodes et al., 2010, 2011a, 2013b; Rhodes, 2012). Similarly, study designs that are informed by multiple perspectives may be more authentic to the community and its members' natural ways of doing things. "
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    • "For commercial re-use, please contact knowledge of community members (Cashman et al., 2008, Flicker, 2008, Jackson, 2008, Daley et al., 2010; Nind, 2011). Recognizing that community members bring rich lay expertise, these pioneers of collaborative analysis are finding creative ways to make health research inclusive, participatory , rigorous and, often, more fun. "
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