Driving to Learn in a Powered Wheelchair: The Process of Learning Joystick Use in People With Profound Cognitive Disabilities

Division of Occupational Therapy and Gerontology, Lund University, Lund, Sweden.
The American journal of occupational therapy.: official publication of the American Occupational Therapy Association (Impact Factor: 1.7). 11/2011; 65(6):652-60. DOI: 10.5014/ajot.2011.001750
Source: PubMed


The Driving to Learn project explored ways to help people with profound cognitive disabilities practice operating a joystick-operated powered wheelchair. The project used a grounded theory approach with constant comparative analysis and was carried out over 12 yr. The participants were 45 children and adults with profound cognitive disabilities. Reference groups included 17 typically developing infants and 64 participants with lesser degrees of cognitive disability. The data sources included video recordings, field notes, open interviews, and a rich mixture of literature. The findings that emerged yielded strategies for facilitating achievements, an 8-phase learning process, an assessment tool, and a grounded theory of deplateauing explaining the properties necessary for participants to exceed expected limitations and plateaus. Eight participants with profound cognitive disabilities reached goal-directed driving or higher. Participants were empowered by attaining increased control over tool use, improving their autonomy and quality of life.

88 Reads
  • Source
    • "Following Tefft et al., Furumasu et al. published the pediatric powered wheelchair skills test, which used a five-point scale to quantify a child's driving ability [47]. In 2011, Nilsson et al. reported several strategies that have been applied to teach EPW driving skills for children with cognitive disabilities [48] [49]. These studies have demonstrated the strong association of cognitive, sensory, and motor assessments with better training strategies in children [48]. "
    [Show abstract] [Hide abstract]
    ABSTRACT: The electric powered wheelchair (EPW) is an indispensable assistive device that increases participation among individuals with disabilities. However, due to lack of standardized assessment tools, developing evidence based training protocols for EPW users to improve driving skills has been a challenge. In this study, we adopt the principles of participatory research and employ qualitative methods to develop the Power Mobility Screening Tool (PMST) and Power Mobility Clinical Driving Assessment (PMCDA). Qualitative data from professional experts and expert EPW users who participated in a focus group and a discussion forum were used to establish content validity of the PMCDA and the PMST. These tools collectively could assess a user's current level of bodily function and their current EPW driving capacity. Further multicenter studies are necessary to evaluate the psychometric properties of these tests and develop EPW driving training protocols based on these assessment tools.
    BioMed Research International 09/2014; 2014:541614. DOI:10.1155/2014/541614 · 2.71 Impact Factor
  • [Show abstract] [Hide abstract]
    ABSTRACT: Le fauteuil roulant électrique est un outil d’autonomie de déplacement particulièrement intéressant chez le sujet âgé, souvent sous-prescrit dans cette population grandissante. Les limites de son utilisation dépendent de plusieurs facteurs liés au patient ou à son environnement. Le choix du fauteuil, l’évaluation du patient, de ses objectifs et le suivi notamment en matière de positionnement sont des moments importants de la consultation et un enjeu pour les différents intervenants médicaux ou paramédicaux.
    La Lettre de médecine physique et de réadaptation 12/2012; 28(4). DOI:10.1007/s11659-012-0333-4
  • [Show abstract] [Hide abstract]
    ABSTRACT: A common definition of architectural qualities in general and the values of the qualities in particular can differ significantly in the understanding of different operators in the building construction sector. One platform to define and investigate architectural qualities is to use a property management perspective and focus on the tenants and their individual well-being in the accommodation. In this study, architectural qualities were investigated in three residential areas with multi-family buildings in Sweden: Backa Röd, Högsbohöjd and Nybodahöjden. The data were collected from interviews with building industry people and the residential tenants. Three architectural qualities became the foundation for the interviews: properties and characteristics of the surroundings, usage flexibility within the apartment, the patina and mellowness of building components. The investigation of collected data was inspired by a method called grounded theory (GT). In this study, GT was used to discover and develop a theory of architectural caring, where architectural qualities have a bearing on the nature of a residential area. We found that a central focus in the residential property management perspective is architectural caring. To care for the houses, materials, construction and the neighbourhood environment is to care for the residents and give them a sense of belonging.
    Architectural Engineering and Design Management 01/2011; 9(1):1-20. DOI:10.1080/17452007.2012.664325
Show more