"The growing demand for human eggs for research has provoked numerous debates over the social and ethical challenges involved in acquiring those eggs (Mertes & Pennings, 2007; Haimes et al., 2012). One question has attracted much attention: should women providing eggs for research be given any return, either for their eggs or for the interventions and possible risks involved in providing eggs, or would such returns constitute an undue inducement (Egli et al., 2011; Roxland, 2012)? The ESHRE Task Force on Ethics and Law (Pennings et al., 2007) endorsed modest compensation to IVF patients providing eggs for research. "
[Show abstract][Hide abstract] ABSTRACT: This article reports selected findings from a project investigating the question: 'Does volunteering for the 'Newcastle egg sharing for research scheme', in which IVF patients receive reduced fees when providing 50% of their eggs, entail any social and ethical costs?' The focus is on women's views of the role of the reduced fees in persuading them to volunteer. The study fills a gap in knowledge, as there have been no previous investigations of women's experiences of providing eggs for research under such circumstances. This was an interview-based study, designed to gain understanding of the volunteers' perspectives. The main findings are that the interviewees' primary goal is to have a baby; they volunteered to provide eggs for research in order to access cheaper treatment in a context where private IVF fees are high, there is insufficient state funding, and providing eggs for other couples' treatment was deemed unacceptable. Interviewees welcomed the scheme, but were not volunteering entirely under circumstances of their choosing; they would prefer not to provide eggs during their own IVF treatment and under certain circumstances change their minds about so doing. In conclusion, reduced fees, although an important factor, do not act as an undue inducement in persuading volunteers to act against their own interests.
Human Fertility 08/2013; 16(4). DOI:10.3109/14647273.2013.803164 · 1.02 Impact Factor
"The interest in benefitting from reduced fees also suggests that NESR volunteers are not succumbing to appeals to 'gendered altruism' (Plows, 2011:51) and thinking they should 'gift' their eggs. Rather than asking whether potential egg providers are motivated by 'compensation' or 'altruism' (Egli et al., 2011), our research suggests these terms are not mutually exclusive. Interviewees would not 'give their eggs away' while pursuing their goal of a baby, but expressed strong values of future altruism for when that goal had been achieved or abandoned. "
[Show abstract][Hide abstract] ABSTRACT: a b s t r a c t The past decade has seen a growth in demand for human eggs for stem cell related research and, more recently, for mitochondrial research. That demand has been accompanied by global debates over whether women should be encouraged, by offers of payments, in cash or kind, to provide eggs. Few of these debates have been informed by empirical evidence, let alone by the views of women themselves. This article addresses that gap in knowledge by presenting findings from a UK investigation, conducted 2008e2011, which is the first systematic study of women volunteering to provide eggs under such cir-cumstances. This article focuses on the views and experiences of 25 IVF patients who volunteered for the Newcastle 'egg sharing for research' scheme (NESR), in exchange for reduced IVF fees. This was an interview based study, designed to gain understandings of volunteers' perspectives and reasoning. The interviews show that volunteers approached the scheme as a way of accessing more treatment in pursuit of their goal of having a baby, against a landscape of inadequate state provision of treatment and expensive private treatment. The process of deciding to volunteer raised a wide range of uncertainties about the consequent gains and losses, for women already in the uncertain world of the 'IVF roll-ercoaster'. However, interviewees preferred to have the option of the NESR, than not, and they juggled the numerous uncertainties with skill and resilience. The article is as revealing of the ongoing challenges of the UK IVF bio-economy as it is of egg provision. This article adds to the growing body of knowledge of the contributions of tissue providers to the global bio-economy. It also contributes to several areas of wider sociological interest, including debates on the social management of 'uncertainty' and discussions at the interface of sociology and ethics.
[Show abstract][Hide abstract] ABSTRACT: The 2010 Haiti earthquake was one of the most catastrophic episodes in history, leaving 5% of the nation's population killed or injured, and 19% internally displaced. The distinctive combination of earthquake hazards and vulnerabilities, extreme loss of life, and paralyzing damage to infrastructure, predicts population-wide psychological distress, debilitating psychopathology, and pervasive traumatic grief. However, mental health was not referenced in the national recovery plan. The limited MHPSS services provided in the first eight months generally lacked coordination and empirical basis.There is a need to customize and coordinate disaster mental health assessments, interventions, and prevention efforts around the novel stressors and consequences of each traumatic event. An analysis of the key features of the 2010 Haiti earthquake was conducted, defining its "Trauma Signature" based on a synthesis of early disaster situation reports to identify the unique assortment of risk factors for post-disaster mental health consequences. This assessment suggests that multiple psychological risk factors were prominent features of the earthquake in Haiti. For rapid-onset disasters, Trauma Signature (TSIG) analysis can be performed during the post-impact/pre-deployment phase to target the MHPSS response in a manner that is evidence-based and tailored to the event-specific exposures and experiences of disaster survivors. Formalization of tools to perform TSIG analysis is needed to enhance the timeliness and accuracy of these assessments and to extend this approach to human-generated disasters and humanitarian crises.
Prehospital and disaster medicine: the official journal of the National Association of EMS Physicians and the World Association for Emergency and Disaster Medicine in association with the Acute Care Foundation 10/2011; 26(5):353-66. DOI:10.1017/S1049023X11006716
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