Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children's Health
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA. Disability and Health Journal
(Impact Factor: 1.29).
07/2011; 4(3):143-52. DOI: 10.1016/j.dhjo.2010.09.002
Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors is needed. OBJECTIVE/HYPOTHESES: To assess aggravation level among parents of children with and without ASDs.
The sample of 73,030 children aged 4 to 17 years in the 2007 National Survey of Children's Health and their parent respondents were divided into mutually exclusive groups based on child ASD status and other special health care needs. Adjusted prevalence ratios (aPR) for associations between a high Aggravation in Parenting scale score and various risk factors were computed from multivariable models.
High-aggravation percentages were comparable for parents of children with a current ASD (36.6%), ASD reported previously but not currently (35.2%), and another (non-ASD) developmental problem (31.2%) but were significantly lower for parents of children with other special health care needs (6.5%) and no special health care needs (5.1%). Within the current-ASD group, high aggravation was associated with young child age (aPR = 1.8 [1.2-2.6]), lack of health insurance (aPR = 1.5 [1.0-2.4]), lack of a medical home (aPR = 2.2 [1.4-3.5]), recent child mental health treatment (aPR = 2.1 [1.5-3.0]), lack of parenting emotional support (aPR = 1.5 [1.1-2.1]), and ASD severity (aPR = 1.4 [1.0-1.6]). Some of these same factors were associated with aggravation in the non-ASD groups. However, the medical home finding was specific to the ASD groups.
Parenting a child with ASD is associated with high aggravation; however, there is variability within health care and social support subgroups. Strategies to strengthen medical home components for children with ASDs should be considered.
Available from: Annette M. Estes
- "Thus, research is needed to clarify the contributors to increased stress in parents of children with ASD. Evidence suggests that parents of younger children may experience higher levels of stress than parents of older children with ASD  . In the only longitudinal study of very young children of which we are aware, parents of toddlers (aged 18–33 months) demonstrated increased depressive symptoms with many mothers continuing to report increased symptoms two years later . "
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ABSTRACT: Background:Parents of children with autism spectrum disorders (ASDs) are at risk for higher stress levels than parents of children with other developmental disabilities and typical development. Recent advances in early diagnosis have resulted in younger children being diagnosed with ASDs but factors associated with parent stress in this age group are not well understood. Aims: The present study examined parenting-related stress and psychological distress in mothers of toddlers with ASD, developmental delay without ASD (DD), and typical development. The impact of child problem behavior and daily living skills on parenting-stress and psychological distress were further investigated. Methods: Participants were part of a larger research study on early ASD intervention. Results: Parent self-report of parenting-related stress and psychological distress was utilized. Parents of toddlers with ASD demonstrated increased parenting-related stress compared with parents of toddlers with DD and typical development. However, psychological distress did not differ significantly between the groups. Child behavior problems, but not daily living skills emerged as a significant predictor of parenting-related stress and psychological distress. This was true for both mothers of children with ASD and DD. Conclusions: These finding suggest that parents' abilities to manage and reduce behavior problems is a critical target for interventions for young children with ASD and DD in order to improve child functioning and decrease parenting-related stress.
Brain & development 11/2012; 35(2). DOI:10.1016/j.braindev.2012.10.004 · 1.88 Impact Factor
Available from: Sheree Boulet
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ABSTRACT: Studies document various associated health risks for children with developmental disabilities (DDs). Further study is needed by disability type. Using the 2006-2010 National Health Interview Surveys, we assessed the prevalence of numerous medical conditions (e.g. asthma, frequent diarrhea/colitis, seizures), health care use measures (e.g. seeing a medical specialist and >9 office visits in past year), health impact measures (e.g. needing help with personal care), and selected indicators of unmet health needs (e.g. unable to afford needed prescription medications) among a nationally representative sample of children ages 3-17 years, with and without DDs. Children in four mutually exclusive developmental disability groups: autism (N = 375), intellectual disability (ID) without autism (N = 238); attention-deficit/hyperactivity disorder (ADHD) without autism or ID (N = 2901); and learning disability (LD) or other developmental delay without ADHD, autism, or ID (N = 1955); were compared to children without DDs (N = 35,775) on each condition or health care measure of interest. Adjusted odds ratios (aORs) were calculated from weighted logistic regression models that accounted for the complex sample design. Prevalence estimates for most medical conditions examined were moderately to markedly higher for children in all four DD groups than children without DDs. Most differences were statistically significant after adjustment for child sex, age, race/ethnicity, and maternal education. Children in all DD groups also had significantly higher estimates for health care use, impact, and unmet needs measures than children without DDs. This study provides empirical evidence that children with DDs require increased pediatric and specialist services, both for their core functional deficits and concurrent medical conditions.
Research in developmental disabilities 11/2011; 33(2):467-76. DOI:10.1016/j.ridd.2011.10.008 · 4.41 Impact Factor
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ABSTRACT: Drawing on data from a survey of 430 families who were recipients of a government financial assistance scheme, the study found that different types of children issues affected different types of psychological self-concepts experienced by the sample of low-income parents. While parents' sense of self-efficacy was decreased by children's poor grades, parenting stress was aggravated by both children's health and behaviour problems. The effects were stronger for parents with teenage children than parents with younger children. The findings imply the importance of better integration of services to meet the different needs of low-income families, and of a supportive manner of providing assistance.
Asia Pacific journal of social work 03/2012; 22(1-2):50-62. DOI:10.1080/02185385.2012.681144 · 0.04 Impact Factor
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