Article

Advancing the science of recruitment and retention of ethnically diverse populations.

Division of General Internal Medicine, University of California San Francisco 94118-1944, USA.
The Gerontologist (Impact Factor: 2.48). 06/2011; 51 Suppl 1:S142-6. DOI: 10.1093/geront/gnr019
Source: PubMed

ABSTRACT We highlight several critical challenges that must be addressed to accelerate the advancement of the science on recruitment and retention of ethnically diverse older adults into health research. These include the relative lack of attention by researchers to methodological issues related to recruitment and retention of ethnically diverse populations and the inadequacy of funding to advance systematically this field. We describe strategies used by the Resource Centers on Minority Aging Research and other National Institute of Aging-funded programs to advance the science of recruitment of ethnically diverse older adults. Finally, we propose a set of broad recommendations designed to generate a body of evidence on successful methods of recruitment and retention of ethnically diverse populations in health research. To eliminate health disparities and better understand aging processes in ethnically diverse populations, much more research is needed on effective strategies for increasing minority enrollment in health research. Comparative effectiveness research on more intensive recruitment and retention methods, which are often needed for including diverse populations, will require dedicated funding and concerted efforts by investigators.

0 Bookmarks
 · 
96 Views
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Abstract Purpose . To describe effective retention strategies in a clinical trial with a high risk, low-income, and vulnerable patient population with serious mental illness. Design . Follow-up assessments were conducted for a randomized clinical tobacco treatment trial at 3, 6, and 12 months postbaseline. Initial follow-up rates of <40% at 3 months led to implementation of proactive retention strategies including obtaining extensive contact information; building relationships with case managers and social workers; contacting jails and prisons; text messaging, e-mailing, and messaging via social networking sites; identifying appointments via electronic medical record; and field outreach to treatment facilities, residences, and parks. Setting . Large urban public hospital. Subjects . Participants were current smokers recruited from 100% smoke-free locked psychiatry units. Measures . Assessments covered demographics, substance use, and mental health functioning. Analysis . Retention rates were plotted over time in relation to key retention strategies. Chi-square and t-tests were used to examine participant predictors of retention at each follow-up. At the 12-month follow-up, the retention strategies that most frequently led to assessment completion were identified. Results . The sample (N = 100) was 65% male; age x¯ = 39.5 years (SD = 11.3); 44% non-Hispanic white; 46% on Medicaid and 34% uninsured; 79% unemployed; and 48% unstably housed. Proactive retention strategies dramatically increased follow-up rates, concluding at 3 months = 82.65%, 6 months = 89.69%, and 12 months = 92.78%. Married and divorced/separated/widowed participants, those with higher income, and participants with alcohol or illicit drug problems had increased retention from 3- to 12-month follow-up. Conclusion . Follow-up rates improved as proactive methods to contact participants were implemented. Dedicated research staff, multiple methods, community networking, and outreach within drug treatment settings improved retention.
    American journal of health promotion: AJHP 07/2013; · 2.37 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: The Health Research Engagement Intervention (HREI) aims to reduce information and access disparities for breast cancer research opportunities among low-socioeconomic status (SES) and limited English proficient (LEP) breast cancer survivors by providing neutral, non-trial-specific information about health research via a trusted patient navigator. Qualitative methods in the context of a community-based participatory research design were used to iteratively design the HREI in collaboration with community-based care navigators from a trusted community organization, Shanti Project, and to locate appropriate research studies in collaboration with a web-based trial-matching service, BreastCancerTrials.org (BCT). Navigators were first trained in clinical trials and health research and then to deliver the HREI, providing feedback that was incorporated into both the HREI design and BCT's interface. Our intervention pilot with low SES and LEP survivors (n = 12) demonstrated interest in learning about "health research." All 12 participants opted to obtain more information when offered the opportunity. Post-intervention questionnaires showed that three of 11 (27 %) participants independently pursued additional information about research opportunities either online or by phone in the week following the intervention. Post-intervention navigator questionnaires indicated that navigators could confidently and efficiently deliver the intervention. LEP patients who pursued information independently faced language barriers. The HREI is a promising and potentially scalable intervention to increase access to neutral information about breast cancer research opportunities for low-SES and LEP individuals. However, in order for it to be effective, systems barriers to participation such as language accessibility at sources of health research information must be addressed.
    Journal of Cancer Education 04/2014; · 0.88 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Article Longitudinal health studies are often hampered by high rates of loss to follow-up of participants (Davis, Broome, & Cox, 2002). Although loss to follow-up can be a prob-lem in any prospective study, older adults, minorities, and people with low incomes can be particularly difficult to recruit and retain (Kagawa-Singer, 2000; Napoles & Chadiha, 2011). Nonrandom loss to follow-up can bias results and affect the accuracy, validity, and translational value of research (Groves, 2006; Matthews, Chatfield, Freeman, McCracken, & Brayne, 2004), making it difficult to apply results to underrepresented groups or to develop inclusive evidence-based health policies and practice guidelines that support population health equity (Odierna & Schmidt, 2009; Tugwell, de Savigny, Hawker, & Robinson, 2006). The objective of our study was to deepen understanding of multidimensional barriers to and facilitators of participant retention in community-based and outpatient health studies. We explored how social health determinants and characteris-tics of research participants, studies, and the context in which research is conducted might interact to affect loss to follow-up of diverse groups of participants in a broad range of stud-ies at three academic research centers.
    SAGE Open 10/2014; 2014(4).

Full-text (2 Sources)

Download
10 Downloads
Available from
May 30, 2014