Patient Education: To the Internet and Beyond

UCSF Department of Physiological Nursing, San Francisco, California, USA.
Pediatric Blood & Cancer (Impact Factor: 2.39). 07/2011; 57(1):6-7. DOI: 10.1002/pbc.23123
Source: PubMed
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    ABSTRACT: Purpose: Video-sharing sites have become increasingly important in recent years in providing information and orienting people's decisions relating to their health. Adolescents and their families use internet to obtain information on pediatric oncological diseases. Methods: We describe the availability and type of video content and origin on YouTube relating to a particular set of pediatric neoplastic diseases, that is, rhabdomyosarcoma and soft-tissue sarcoma. Results: A total of 149 videos were analyzed: 25 were considered as useful; only 1 video was produced by a doctor, whereas 82.5% were produced by patients or their families, in many cases for commemorating the death of a child. Conclusions: Our observations indicate that video-sharing sites have become tools, such as blogs and social media, that make it easier for patients to describe their impressions and experiences of the disease, and this could help other patients devise strategies for coping with the disease, providing them with support and opportunities for sharing information and resources.
    Journal of Pediatric Hematology/Oncology 07/2012; 34(8). DOI:10.1097/MPH.0b013e31825886f8 · 0.90 Impact Factor
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    ABSTRACT: Integration of the nursing discipline within cooperative groups conducting pediatric oncology clinical trials provides unique opportunities to maximize nursing's contribution to clinical care, and to pursue research questions that extend beyond cure of disease to address important gaps in knowledge surrounding the illness experience. Key areas of importance to the advancement of the nursing discipline's scientific knowledge are understanding the effective delivery of patient/family education, and reducing illness-related distress, both of which are integral to facilitating parental/child coping with the diagnosis and treatment of childhood cancer, and to promoting resilience and well-being of pediatric oncology patients and their families. Pediatr Blood Cancer © 2012 Wiley Periodicals, Inc.
    Pediatric Blood & Cancer 06/2013; 60(6). DOI:10.1002/pbc.24415 · 2.39 Impact Factor

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