Why deidentification fails research subjects and researchers.
- SourceAvailable from: Mark Rothstein[Show abstract] [Hide abstract]
ABSTRACT: My recent American Journal of Bioethics target article, “Is Deidentification Sufficient to Protect Health Privacy in Research?” (Rothstein 2010), generated 13 open peer commentaries (OPCs). Twelve generally agree with my basic premise that it is ethically problematic for researchers to deidentify and use health information and biological specimens without the knowledge, consent, or authorization of the individual source of the information or sample. These 12 OPCs provide valuable insights, critiques, and suggestions about issues in the target article. I want to begin this response, however, by considering the one OPC highly critical of my assertion of the need to alter the status quo.The American Journal of Bioethics 09/2010; 10(9):W1-2. DOI:10.1080/15265161.2010.507654 · 2.45 Impact Factor
- Science 01/2011; 331(6015):287-8. DOI:10.1126/science.1199000 · 31.48 Impact Factor