Factors of high impacts on the life of caregivers of disabled elderly.
ABSTRACT Elderly caregivers suffer physical and psychological consequences of the act of caring. The objective of this study was to characterize primary caregivers of elderly people in the community and identify the higher impacts of this activity on their life. We interviewed 127 caregivers about sociodemographic characteristics, presence of anxiety/depression (self-reporting questionnaire=SRQ), burden of care (caregiver burden scale=CBS); while their dependents were evaluated using sociodemographic questionnaires, health history, activities of daily living (ADL) scale and geriatric depression scale (GDS-15). The caregivers' mean age was 55.1+/-13.3 years; among them most were women and daughters with up to 4 years of education. The mean time as responsible for the elderly was 86.5+/-96.3 months; 56% divided the caring responsibility and 28.2% had another occupation; 32.3% presented psychoemotional illness. There was a positive correlation between the CBS and the caregiver factors: psychoemotional disorders, time as responsible for the elderly and education level; as well as between the CBS and the elderly: number of activities with dependence, presence of depression and incontinences. The correlation between the elderly's personal income and number of visits received was negative. The identification of high impacts on the caregivers' life would facilitate the professional approach.
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ABSTRACT: INTRODUCTION: Caring for people with dementia incurs significant stress for carers. Stress has been related to the duration of caring role, the number of weekly hours provided and severity of cognitive impairment. What remains less clear is the impact of neuropsychiatric symptoms and subtype of dementia on carer stress and this study aimed to examine these. METHODS: Dementia carers were recruited for people with a range of dementia subtypes. Carers were interviewed using the Neuropsychiatric Inventory with the Carer Distress Scale. Cognitive fluctuations were assessed using the Dementia Cognitive Fluctuations Scale. All patients were also examined with The Cambridge Assessment for mental disorders in the elderly. RESULTS: Dementia diagnostic subtype, the presence of cognitive fluctuations and some neuropsychiatric symptoms (psychosis and mood disturbance) did predict carer stress (all at p < 0.01) but age, gender and severity of cognitive impairment did not (all p > 0.33). Carers of people with dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD) experienced more stress than those caring for patients with Alzheimer's disease and vascular dementia. Carer stress was associated with higher levels of psychosis, mood disturbances, daytime sleep and cognitive fluctuations in the person with dementia. CONCLUSIONS: This study identified the significant impact on carers of providing care for people with DLB and PDD dementia subtypes and also highlighted the significant impact of providing care for patients with high levels of psychosis, mood disturbances and cognitive fluctuations. Copyright © 2012 John Wiley & Sons, Ltd.International Journal of Geriatric Psychiatry 03/2012; · 2.98 Impact Factor
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ABSTRACT: Caregivers represent an important source of care for older adults. Many studies focused on the negative aspects of elder caregiving but few studies have analyzed also the positive effects. In addition, no studies have considered contemporarily the positive and the negative impact of caregiving to elderly people on the same people using a structural equation modeling. The purpose of this study was to examine the contribution of elder care recipient factors, caregiver factors and caregiving factors in determining the positive and negative impact of informal caregiving to older adults using a structural equation model. A cross-sectional design was used to study eighty caregivers of older people. Several instruments were used to measure elder care recipient factors (functionality, cognition, behavior); caregiver factors (socio-demographics, depression, stress, quality of life, and perceived health); caregiving factors (time from caregiving, time of care, social restriction, place of living, expenses, and living with the elder care recipient); and the positive and the negative impact of caregiving. Caregivers were 59.7 years old while elderly people were 84.0. Several factors were significantly correlated with the positive and negative impact of caregiving. However, when these factors were entered in a structural equation model, only female gender and social restriction predicted the negative impact, while caregiver's quality of life and caregiving expenses predicted both the positive and the negative impact. The results of this study suggest a new framework of caregiving to older adults where the outcomes depend more on caregiver and caregiving factors than on older person characteristics. More research is needed with a larger sample to test further the model outlined in this study.Professioni infermieristiche 10/2011; 64(4):237-248.
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ABSTRACT: BACKGROUND AND OBJECTIVE: The number of elderly living in long-term care (LTC) institutions has been increasing in many countries. The objective of this study was to evaluate the caregivers' attitudes and considerations regarding oral health and oral health practices in an LTC institution in Porto Alegre, Brazil. MATERIALS AND METHODS: The population comprised the caregivers (n = 27) at an LTC in Porto Alegre, Brazil. Participants answered a questionnaire assessing the time of work at the LTC, number of elderly under their responsibility, their previous training to perform general and oral healthcare, availability of oral hygiene supplies and oral hygiene tasks they performed. RESULTS: A total of eighteen (75%) and 23 (95.8%) of the caregivers answered they performed teeth and denture brushing as part of their routine. When asked about performing hygiene of the mucosa with gauze, 21 (87.5%) participants stated that they did so. However, when asked if they would motivate the independent elderly to perform oral hygiene, only 10 (41.7%) of the caregivers responded positively. CONCLUSION: Caregivers' oral health practices are in accordance with good oral health methods and are not associated with difficulties in performing oral hygiene. However, the high number of elderly people in their care could possibly overwhelm caregivers' practices. Future qualitative assessment of these issues is needed.Gerodontology 11/2012; · 1.83 Impact Factor