The effects of Internet or interactive computer-based patient education in the field of breast cancer: a systematic literature review.

Department of Nursing Science, University of Turku and Department of Oncology and Radiotherapy, Turku University Hospital, Turku, Finland.
Patient Education and Counseling (Impact Factor: 2.6). 10/2009; 79(1):5-13. DOI: 10.1016/j.pec.2009.08.005
Source: PubMed

ABSTRACT The aim of this systematic review was to analyze what kind of Internet or interactive computer-based patient education programs have been developed and to analyze the effectiveness of these programs in the field of breast cancer patient education. Patient education for breast cancer patients is an important intervention to empower the patient. However, we know very little about the effects and potential of Internet-based patient education in the empowerment of breast cancer patients.
Complete databases were searched covering the period from the beginning of each database to November 2008. Studies were included if they concerned patient education for breast cancer patients with Internet or interactive computer programs and were based on randomized controlled, on clinical trials or quasi-experimental studies.
We identified 14 articles involving 2374 participants. The design was randomized controlled trial in nine papers, in two papers clinical trial and in three quasi-experimental. Seven of the studies were randomized to experimental and control groups, in two papers participants were grouped by ethnic and racial differences and by mode of Internet use and three studies measured the same group pre- and post-tests after using a computer program. The interventions used were described as interactive computer or multimedia programs and use of the Internet. The methodological solutions of the studies varied. The effects of the studies were diverse except for knowledge-related issues. Internet or interactive computer-based patient education programs in the care of breast cancer patients may have positive effect increasing breast cancer knowledge.
The results suggest a positive relationship between the Internet or computer-based patient education program use and the knowledge level of patients with breast cancer but a diverse relationship between patient's participation and other outcome measures.
There is need to develop and research more Internet-based patient education.

1 Bookmark
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Background There is growing recognition of the importance of the active involvement of consumers and community members in health care. Despite the long history of consumer and community engagement (CCE) research and practice, there is no consensus on the best strategies for CCE. In this paper, we identify various dimensions of CCE-related strategies and offer a practical model to assist policy-makers, practitioners and researchers. Methods We undertook a large-scale, scoping meta-review and searched six databases using a list of nine medical subject headings (MeSH) and a comprehensive list of 47 phrases. We identified and examined a total of 90 relevant systematic reviews. Results Identified reviews show that although there is a significant body of research on CCE, the development of the field is hindered by a lack of evidence relating to specific elements of CCE. They also indicate a diverse and growing enterprise, drawing on a wide range of disciplinary, political and philosophical perspectives and a mix of definitions, targets, approaches, strategies and mechanisms. CCE interventions and strategies aim to involve consumers, community members and the public in general, as well as specific sub-groups, including children and people from culturally and linguistically diverse backgrounds. Strategies for CCE vary in terms of their aim and type of proposed activity, as do the methods and tools which have been developed to support them. Methods and tools include shared decision making, use of decision aids, consumer representation, application of electronic and internet-based facilities, and peer support. The success of CCE is dependent on both the approach taken and contextual factors, including structural facilitators such as governmental support, as well as barriers such as costs, organisational culture and population-specific limitations. Conclusions The diversity of the field indicates the need to measure each component of CCE. This meta-review provides the basis for development of a new eight stage model of consumer and community engagement. This model emphasises the importance of clarity and focus, as well as an extensive evaluation of contextual factors within specific settings, before the implementation of CCE strategies, enabling those involved in CCE to determine potential facilitators and barriers to the process.
    BMC Health Services Research 09/2014; 14:402. · 1.77 Impact Factor
  • [Show abstract] [Hide abstract]
    ABSTRACT: PURPOSE: This integrative review aims to gather more knowledge of the design of supportive e-health interventions for patients diagnosed with cancer and subsequently analyze and synthesize that knowledge in a potential explanatory model for those interventions. METHODS: PubMed, CINAHL and PsycINFO were searched for abstracts dating from 2000 through to June 2012. Eligible articles concerned education or support for adult cancer patients, and were provided either on the Internet or using CD-ROM or DVD. RESULTS: Twenty-eight quantitative studies constituted the final sample, revealing that supportive e-health programs in the field of cancer are being used and are helpful to individuals despite their age, gender, literacy level and disease-stage. Each e-health program usually constitutes a single service with a variety of multimedia features, which leads to different designs yet with common outcomes. Some of these outcomes are theoretically explained, although a structure that links all aspects of the intervention is rarely found. Moreover, different designs have also been adopted for testing the interventions' effectiveness. CONCLUSION: E-health interventions that allow supportive needs to be satisfied are leading to positive effects for individuals with different preferences and priorities. Even though several communalities could be found across interventions, methodological aspects of design, implementation and evaluation still vary, leading to some inconsistency. Models and applied theories are needed to clarify such issues, thus enhancing the credibility and applicability of supportive e-health programs across target populations.
    European journal of oncology nursing: the official journal of European Oncology Nursing Society 11/2012; · 1.13 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Head and Neck (H&N) cancers are a diverse group of malignant tumors arising in the mouth, nose, pharynx and larynx. They are the 8th most common cancers in the world. Individuals who receive a diagnosis of these cancers often have enormous unmet informational needs. In spite of a large quantity of literature advocating the necessity to move from “one size fits all” to a tailored approach while providing information to cancer patients, the majority of hospitals provide information in an ad hoc manner. The primary aim of this study was to investigate the impacts of a multimedia based tailored information service on H&N cancer patients' anxiety, depression, satisfaction and cancer knowledge ratings. Our secondary aim was to describe and compare the experiences of H&N cancer patients’ receiving information concerning their cancer and treatment at two hospitals with different approaches to deliver information. We used an embedded mixed methods research design within a non-randomized controlled trial within which we nested a qualitative study to address the aforementioned secondary aims. The project was conducted with stage III and IV H&N cancer patients at the participating hospitals. Ethical approval was obtained from the Institutional Review Board and the Research Ethics Boards of the participating hospitals. The test hospital delivered the Multimode Comprehensive Tailored Information Package (MCTIP) and the control hospital received the normal care. A total of 103 individuals with H&N cancer took part in the quantitative study, out of which 96 participants completed baseline and all follow up evaluations. In the qualitative study, a subsample of 11 participants of the main study and 2 Nurse Pivots took part. Quantitative and qualitative data were collected concurrently. Our study findings show that the participants who received the test intervention experienced significantly lower levels of anxiety, had higher levels of cancer knowledge, were better satisfied with the information they received and had a good information provision experience in comparison to the subjects who received the normal care. Therefore, we conclude that MCTIP is a potentially beneficial adjuvant in H&N cancer care.
    02/2013, Degree: PhD, Supervisor: Dr. Paul J Allison