38 The Effects of Internet Based Patient Education in the Field of Breast Cancer – a Systematic Literature Review

Department of Nursing Science, University of Turku and Department of Oncology and Radiotherapy, Turku University Hospital, Turku, Finland.
Patient Education and Counseling (Impact Factor: 2.2). 10/2009; 79(1):5-13. DOI: 10.1016/j.pec.2009.08.005
Source: PubMed


The aim of this systematic review was to analyze what kind of Internet or interactive computer-based patient education programs have been developed and to analyze the effectiveness of these programs in the field of breast cancer patient education. Patient education for breast cancer patients is an important intervention to empower the patient. However, we know very little about the effects and potential of Internet-based patient education in the empowerment of breast cancer patients.
Complete databases were searched covering the period from the beginning of each database to November 2008. Studies were included if they concerned patient education for breast cancer patients with Internet or interactive computer programs and were based on randomized controlled, on clinical trials or quasi-experimental studies.
We identified 14 articles involving 2374 participants. The design was randomized controlled trial in nine papers, in two papers clinical trial and in three quasi-experimental. Seven of the studies were randomized to experimental and control groups, in two papers participants were grouped by ethnic and racial differences and by mode of Internet use and three studies measured the same group pre- and post-tests after using a computer program. The interventions used were described as interactive computer or multimedia programs and use of the Internet. The methodological solutions of the studies varied. The effects of the studies were diverse except for knowledge-related issues. Internet or interactive computer-based patient education programs in the care of breast cancer patients may have positive effect increasing breast cancer knowledge.
The results suggest a positive relationship between the Internet or computer-based patient education program use and the knowledge level of patients with breast cancer but a diverse relationship between patient's participation and other outcome measures.
There is need to develop and research more Internet-based patient education.

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    • "Patient education is considered an important intervention to empower patients [7] and increase their compliance [3]. Computer-aided patient education has been advocated as a new means of improving patient compliance and self-awareness and of enabling patients to better understand treatment protocols, avoid complications, and practice positive health behaviors. "
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    ABSTRACT: The lack of patient compliance to medical recommendations and treatments suggested by doctors has long been a significant problem. In practice, patient education is considered an important intervention to empower patients and increase their compliance. It has been advocated as a means of improving patient medical knowledge and compliance. However, evidence of the efficacy of computer-aided patient education is still relatively limited, little is known on how the latest mobile technologies affect patients' compliance behavior. Based on Rational Choice Theory (RCT) and Theory of Planned Behavior (TPB), we propose and test a research model to investigate the compliance behavior of patients supported by a mobile healthcare system. We conducted a field survey with actual patients in the U.S. Who used the system, and employed SEM techniques for data analysis. Overall, we found strong support for using RCT and TPB as a key theoretical foundation to assess patients' compliance behavior.
    Hawaii International Conference on Systems Sciences (HICSS 2015), Kauai, HI, January 5–8 (accepted 17-Aug-2014), Kauai, HI; 01/2015
    • "• Scenario 3 – Cancer risk: " Target-group specific information and communication technology-assisted preventive medicine is widely used to reduce the individual's cancer risk. " [24] [25] [26]. • Scenario 4 – Insurance rates: " Funding of health insurances is deregulated, and insurance rates depend on individual information and communication technology-tracked lifestyle choices. "
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    ABSTRACT: Purpose: Increasingly, Information and Communication Technology (ICT) applications enter the daily lives of consumers. Availability of various multimedia interfaces offers the opportunity to develop and adjust ICT solutions to all aspects of society including health care. To address the challenges of the ongoing adaptive progress of ICT, decision makers profit from estimates of expectable merits and risks of future technological developments. The aim of the present study was to assess the prevailing opinions and expectations among Austrian stakeholders regarding ICT-assisted health promotion. Methods: In total, 73 experts (74% males) engaged in the Austrian health care sector participated in a biphasic online Delphi survey. Panellists were assigned to three groups representing medical professionals, patient advocates, and administrative personnel. In a scenario-based questionnaire, experts evaluated potential advantages and barriers as well as degree of innovation, desirability, and estimated date of implementation of six future ICT scenarios. Scenario-specific and consolidated overall opinions were ranked. Inter-group differences were assessed using ANOVA. Results: Panellists expected the future ICT-supported health promotion strategies to especially improve the factors living standard (56%), quality of health care (53%), and patient's knowledge (44%). Nevertheless, monetary aspects (57%), acceptance by patient advocates (45%), and data security and privacy (27%) were considered as the three most substantial hampering factors for ICT applications. Although overall mean desirability of the scenarios was quite high (80%) amongst panellists, it was considerably lower in medical professionals compared to patient advocates and administrative personnel (p=0.006). This observation suggests a more precautious attitude of this specific interest group regarding technological innovations. Conclusions: The present Delphi survey identified issues relevant for successful implementation of ICT-based health care solutions, providing a compilation of several areas that might require further research. In the light of ageing societies facing the perceived threat of permanent online surveillance, different requirements and expectations of end users should be accounted for by various stakeholders. Thus, close collaboration could facilitate the harmonization process on hot health topics among interest groups.
    International Journal of Medical Informatics 09/2014; 84(1). DOI:10.1016/j.ijmedinf.2014.09.005 · 2.00 Impact Factor
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    • "The Internet may offer opportunities to actively improve health care as the provision of high quality on-line information might increase breast cancer knowledge and psychosocial functioning [16,18]. However, a recent review on Internet-based information and education in the field of breast cancer stressed the need to further develop and investigate on-line provision of information and support [18]. "
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    ABSTRACT: Background On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website. Methods The development process included quantitative and qualitative assessments of survivors’ and partners’ care needs and preferences. Participants’ use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10–12 weeks 57 survivors and 28 partners were granted access to the website. Results Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal. Conclusions The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision.
    BMC Research Notes 10/2012; 5(1):548. DOI:10.1186/1756-0500-5-548
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