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Dilemmas of Patient Expertise: People Living with HIV as Peer Educators in a Ghanaian Hospital

Ghana Studies 01/2013; 2013(15/16):195.

ABSTRACT This article analyses the work lives of formally trained peer educators in an HIV clinic at the Komfo Anokye Teaching Hospital in Kumasi, Ghana. As HIV-positive persons and clients of the clinic, the peer educators have been trained in counselling and principles of basic hygiene to complement the work of health workers. They also provide a helping hand when the work at the clinic is too much for other healthcare providers. Drawing on data from fifteen months of ethnographic research in the VCT centre and ART clinic of the above mentioned hospital, it was found that, despite the wide range of services offered by peer educators, there is a general lack of recognition for their work by hospital authorities or health workers. By examining the frictions between differently positioned healthcare providers we demonstrate what is at stake for PLHIV peer educators in their daily work lives in an attempt to understand why they continue to work in the clinic despite lack of collegial recognition and not being paid for their work.

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    ABSTRACT: In 2006, the Kenyan state joined the international commitment to make antiretroviral treatment free in public health institutions to people infected with HIV. Less than a decade later, treatment has reached over 60% of those who need it in Kenya. This paper, which is based on an in-depth ethnographic case study of the HIV treatment programme at Kenyatta National Hospital, conducted intermittently between 2008 and 2014, examines how HIV-positive peer mentors encourage and track adherence to treatment regimens within and beyond the clinic walls using mobile phones and computer technology. This research into the everyday practices of patient monitoring demonstrates that both surveillance and adherence are collective activities. Peer mentors provide counselling services, follow up people who stray from treatment regimens, and perform a range of other tasks related to patient management and treatment adherence. Despite peer mentors' involvement in many tasks key to encouraging optimal adherence, their role is rarely acknowledged by co-workers, hospital administrators, or public health officials. Following a biomedical paradigm, adherence at Kenyatta and in Kenya is framed by programme administrators as something individual clients must do and for which they must be held accountable. This framing simultaneously conceals the sociality of adherence and undervalues the work of peer mentors in treatment programmes.
    Anthropology and Medicine 08/2014; 21(2):149-61. DOI:10.1080/13648470.2014.925083

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Jul 14, 2014