Using the NIH Toolbox in special populations Considerations for assessment of pediatric, geriatric, culturally diverse, non-English-speaking, and disabled individuals
ABSTRACT In order to develop health outcomes measures that are relevant and applicable to the general population, it is essential to consider the needs and requirements of special subgroups, such as the young, elderly, disabled, and people of different ethnic and cultural backgrounds, within that population.The NIH Toolbox project convened several working groups to address assessment issues for the following subgroups: pediatric, geriatric, cultural, non-English-speaking, and disabled. Each group reviewed all NIH Toolbox instruments in their entirety.Each working group provided recommendations to the scientific study teams regarding instrument content, presentation, and administration. When feasible and appropriate, instruments and administration procedures have been modified in accordance with these recommendations.Health outcome measurement can benefit from expert input regarding assessment considerations for special subgroups.
- SourceAvailable from: Paul A Pilkonis[Show abstract] [Hide abstract]
ABSTRACT: Objective: The quality of our daily social interactions-including perceptions of support, feelings of loneliness, and distress stemming from negative social exchanges-influence physical health and well-being. Despite the importance of social relationships, brief yet precise unidimensional scales that assess key aspects of social relationship quality are lacking. As part of the National Institute of Health (NIH) Toolbox for the Assessment of Neurological and Behavioral Function, we developed brief self-report scales designed to assess aspects of social support, companionship, and social distress across age cohorts. This article details the development and psychometric testing of the adult NIH Toolbox Social Relationship scales. Methods: Social relationship concepts were selected, and item sets were developed and revised based on expert feedback and literature review. Items were then tested across a community-dwelling U.S. Internet panel sample of adults aged 18 and above (N = 692) using traditional (classic) psychometric methods and item response theory approaches to identify items for inclusion in 5-8 item unidimensional scales. Finally, concurrent validity of the newly developed scales was evaluated with respect to their interrelationships with classic social relationship validation instruments. Results: Results provide support for the internal reliability and concurrent validity of resulting self-report scales assessing Emotional Support, Instrumental Support, Friendship, Loneliness, Perceived Rejection, and Perceived Hostility. Conclusion: These brief social relationship scales provide the pragmatic utility and enhanced precision needed to promote future epidemiological and social neuroscience research on the impact of social relationships on physical and emotional health outcomes. (PsycINFO Database Record (c) 2013 APA, all rights reserved).Health Psychology 03/2013; 32(3):293-301. DOI:10.1037/a0028586 · 3.95 Impact Factor
- [Show abstract] [Hide abstract]
ABSTRACT: Objective: The NIH Toolbox is intended to be responsive to the needs of investigators evaluating neurologic and behavioral function in diverse settings. Early phases of the project involved gathering information and input from potential end users. Methods: Information was collected through literature and instrument database reviews, requests for information, consensus meetings, and expert interviews and integrated into the NIH Toolbox development process in an iterative manner. Results: Criteria for instrument inclusion, subdomains to be assessed, and preferences regarding instrument cost and length were obtained. Existing measures suitable for inclusion in the NIH Toolbox and areas requiring new measure development were identified. Conclusion: The NIH Toolbox was developed with explicit input from potential end users regarding many of its key features. Neurology (R) 2013;80 (Suppl 3):S7-S12Neurology 03/2013; 80(Issue 11, Supplement 3):S7-S12. DOI:10.1212/WNL.0b013e3182872e4c · 8.30 Impact Factor
- Neurology 03/2013; 80(Issue 11, Supplement 3):S2-S6. DOI:10.1212/WNL.0b013e3182872e5f · 8.30 Impact Factor