The Parental Cancer Questionnaire: Scale structure, reliability, and validity

University of New South Wales - South Western Sydney Clinical School, Liverpool Hospital, Locked Bag 7103, Liverpool BC, NSW, 1871, Australia, .
Supportive Care in Cancer (Impact Factor: 2.36). 08/2013; 22(1). DOI: 10.1007/s00520-013-1935-z
Source: PubMed


This study aims to determine the principal component structure of the Parental Cancer Questionnaire (PCQ) in a sample of adult children whose parents had cancer and to illustrate the validity and reliability of subscales.
The PCQ was administered to 311 adult children of parents with cancer along with the Posttraumatic Growth Inventory, Carer's Assessment of Difficulties Scale, Carer's Assessment of Satisfactions Scale, Reaction to Diagnosis of Cancer Questionnaire, and the Grief Diagnostic Instrument.
Exploratory Principal Components Analysis identified three dimensions of the parental cancer experience (explaining 51 % of the variance amongst scale items). The components were parental cancer benefits (e.g. 'I became closer to my sick parent during his/her cancer.'), emotional experiences (e.g. 'I was devastated by my parent's cancer.'), and caregiver strain (e.g. 'I feel/felt there was nobody to assist or support me in caring for my parent.'). Convergent and discriminant validity were demonstrated by meaningful correlations with other related measures (ranging from 0.14 to 0.68), and strong internal reliability was shown with Cronbach α between 0.87 and 0.91.
The PCQ has a clear three-component structure and demonstrates good reliability. The measure has excellent face, content, convergent, and discriminant validity, indicating a structure suitable for use in future research. The measure appears to be a useful measure of the experience of parental cancer for adult children.

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    ABSTRACT: This study aimed to investigate the predictors of benefit finding in 311 adult children of patients with cancer. Participants completed a comprehensive on-line/pen and paper survey measuring benefit finding, gender of parent, outcome and duration of illness, caregiving experience, and emotional experiences including reaction to diagnosis and grief and loss. Greater benefit finding was positively associated with stronger emotional experiences, satisfaction with the caregiving role, and outcome of parental cancer, explaining 15.3% of the variance in benefit finding. Higher emotional reactions and outcome of parental cancer as significant predictors of parental cancer provide some support for the applicability of theories of posttraumatic growth to this cohort.
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