The role of parent health literacy among urban children with persistent asthma.

University of Rochester School of Medicine, Rochester, NY 14642, USA.
Patient Education and Counseling (Impact Factor: 2.6). 03/2009; 75(3):368-75. DOI: 10.1016/j.pec.2009.01.004
Source: PubMed

ABSTRACT Health literacy (HL) affects adult asthma management, yet less is known about how parent HL affects child asthma care.
To examine associations between parent HL and measures related to child asthma.
Parents of 499 school-age urban children with persistent asthma in Rochester, New York completed home interviews. Measures: the Rapid Estimate of Adult Literacy in Medicine (REALM) for parent HL; National Heart Lung and Blood Institute (NHLBI) criteria for asthma severity, and validated measures of asthma knowledge, beliefs, and experiences. Analyses: bivariate and multivariate analyses of associations between parent HL measures related to child asthma.
Response rate: 72%, mean child age: 7.0 years. Thirty-two percent had a Hispanic parent; 88% had public insurance. Thirty-three percent had a parent with limited HL. Low parent HL was independently associated with greater parent worry, parent perception of greater asthma burden, and lower parent-reported quality of life. Measures of health care use (e.g., emergency care and preventive medicines) were not associated with parent HL.
Parents with limited HL worried more and perceived greater overall burden from the child's asthma, even though reported health care use did not vary.
Improved parent understanding and provider-parent communication about child asthma could reduce parent-perceived asthma burden, alleviate parent worry, and improve parent quality of life.

  • Source
    Health Sociology Review 06/2013; 22(2):137-150. DOI:10.5172/hesr.2013.22.2.137 · 0.49 Impact Factor
  • [Show abstract] [Hide abstract]
    ABSTRACT: Background: Health literacy has been associated with health disparities in many disease outcomes, including children's asthma. Parents are responsible for most of children's healthcare. Therefore, parents' health literacy may impact children's health outcomes, including asthma control. This study sought to determine the association between parent health literacy and children's asthma control among a cohort of predominately minority urban children aged between 6 and 12 years. Methods: This cross-sectional study assessed children with asthma and their parents at a single outpatient visit. English-speaking parents and their children, aged between 6 and 12 years with physician-diagnosed asthma, were eligible for this study. Healthcare providers assessed asthma control and severity, and parents completed demographic, health literacy, asthma control, and asthma knowledge measures. Children completed a pulmonary function test as part of the Asthma Control Questionnaire (ACQ) scoring. Results: A total of 281 parent-child dyads provided data, with the majority of parents being mothers and African American, with a high school level education or less. Lower parent health literacy was associated with worse asthma control as rated both by the provider (p=0.007) and the ACQ (p=0.013), despite only moderate concordance between ratings (ρ=0.408, p<0.0001). Lower parent health literacy also was associated with less asthma knowledge, which was associated with worse asthma control. Conclusions: Higher parent health literacy was associated with more parent asthma knowledge and better child asthma control. Pediatric providers should consider tailoring education or treatment plans or utilizing universal precautions for low health literacy.
    Pediatric Allergy, Immunology, and Pulmonology 03/2015; 28(1):20-26. DOI:10.1089/ped.2014.0379 · 0.56 Impact Factor
  • Source
    BMC Medical Informatics and Decision Making 11/2012; · 1.50 Impact Factor