Patient perspectives of their leg ulcer journey.

Journal of Wound Care (Impact Factor: 1.11). 02/2013; 22(2):58-66. DOI: 10.12968/jowc.2013.22.2.58
Source: PubMed

ABSTRACT Objective: To understand the personal impact of venous leg ulceration from the patients' perspective. Method: Face-to-face, unstructured interviews were conducted with nine patient participants with venous leg ulcers. The interviews were digitally recorded, transcribed verbatim and, using thematic analysis, the themes and subthemes which impacted on quality of life were identified. Results: Four core themes were identified: the ulcer, symptoms, wound management and effects on daily life, with 16 subthemes that negatively impacted on quality of life (QoL) also identified. Conclusion: This qualitative study offers a valuable insight into the complex issues that impact on daily living for this patient group. The implications of the findings are far reaching and suggest that proactive symptom management and the fostering of a patient focus to consultations may improve QoL and encourage the patient to engage as an active partner in his/her management plan; both of which are explored in the subsequent phases of the larger study. Declaration of interest: This study was funded by West Midlands Strategic Health Authority. The authors have no conflicts of interest to declare.

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    ABSTRACT: Objective: To quantify the extent to which patients disclose their concerns to community nurses during wound care consultations. Method: Using an 'observation checklist' based on themes and subthemes that were identified in a previous study of the same patients, 20 wound care consultations were observed. The non-participant observer completed the checklist and made field notes regarding the context and nature of interactions. Results: Patient participants had 160 opportunities to raise concerns regarding previously-identified pain, exudate and odour, yet they did not do so on 64 (40%) occasions. They had 28, 32 and 84 opportunities to raise emotional, wound care and daily living issues, respectively, and they did not on 16 (56%), 3 (9%) and 32 (38%) occasions. Overall, patients did not raise 38% of their concerns. Of the concerns that were raised, 8% were either not acknowledged or were disregarded by their community nurse. Conclusion: If these data are representative, this has profound implications for person-centred care and shared decision-making models of care, which are predicated on patients articulating their needs. They also have implications for the development of practitioners' communication and consulting skills. Declaration of interest: This study was funded by NHS West Midlands Strategic Health Authority. The authors have no conflicts of interest to declare.
    Journal of Wound Care 10/2013; 22(10):534-9. · 1.11 Impact Factor


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May 19, 2014