“The pump was a savior for me”. Patient′s experiences of insulin pump therapy

School of Health and Social Studies, Dalarna University College
Diabetic Medicine (Impact Factor: 3.12). 02/2013; 30(6). DOI: 10.1111/dme.12155
Source: PubMed


The present study formed part of a larger study examining the potential long-term effects of glycaemic control and treatment satisfaction in people with Type 1 diabetes mellitus who changed from multiple daily insulin injections to insulin pump therapy. Individuals (n = 46) who made the transition between May 1999 and February 2004 participated. The aim of the study was to describe experiences of the impact of insulin pump therapy in adults with Type 1 diabetes mellitus after > 5 years’ use of an insulin pump.
During spring 2009, 16 of the individuals were interviewed through a narrative approach on the effects of insulin pump therapy on daily life. The interviews were analysed using content analysis.
The overarching theme revealed that insulin pump therapy was experienced as both a shackle and a lifeline. Six sub-themes emerged: subjected vs. empowered; dependent vs. autonomous; vulnerable vs. strengthened; routinized vs. flexible; burdened vs. relieved; and stigmatized vs. normalized.
Users of insulin pump therapy have different views about and experience of having used the technical equipment over years. Both positive and negative views emerged. However, it is difficult to identify any general trends that cover all views and can predict which individuals will be able to manage pump therapy in the best way. Even so, the sub-themes and theme that emerged could be used by physicians and diabetes specialist nurses when counselling and planning educational programmes aimed at supporting self-management among people with insulin pump treatment.

Download full-text


Available from: Janeth K. Leksell Rn, May 27, 2014

  • Biomolecular Information Processing, 12/2012: pages 347-350; , ISBN: 9783527332281
  • [Show abstract] [Hide abstract]
    ABSTRACT: Implanted Biofuel Cells References
    Implantable Bioelectronics, 03/2014: pages 363-379; , ISBN: 9783527335251
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: This study describes how adults with type 1 diabetes experience the transition from multiple daily injections (MDI) to continuous subcutaneous insulin infusion (CSII or ‘insulin pump’). The study is based on interviews in focus groups, with 11 persons with type 1 diabetes who had had CSII for at least one year, which were analysed using qualitative content analysis. The analysis resulted in three categories: life and health; involvement of others; and technology dependence. Participants' experiences are summarised in the theme ‘CSII is perceived as liberating, but also implies a sense of the diabetes made visible’. The transition resulted in changed life and health with greater freedom and flexibility, particularly in meal situations. The participants felt that their blood glucose was easier to control. Those around them reacted with curiosity, but some participants felt compelled to tell others that they had diabetes since the pump could be seen or heard. The participants found that coping with CSII in daily life was easier and more comfortable than they had expected. However, having to constantly be prepared for technical failure was experienced as cumbersome. All participants indicated that they were satisfied with their treatment and recommended it to others. Transition to CSII may be experienced as liberating, but might also imply a sense of the diabetes made visible. The results can be used in clinical practice, when advising about CSII. Being aware of both positive and negative experiences with CSII can contribute to better care for those already being treated with CSII. Eur Diabetes Nursing 2014; 11(2): 38–42
    European Diabetes Nursing 07/2014; 11(2). DOI:10.1002/edn.246
Show more