Fears About HIV Transmission in Families With an HIV-Infected Parent: A Qualitative Analysis

Department of Pediatrics, University of California, School of Medicine, Los Angeles, CA 90024, USA.
PEDIATRICS (Impact Factor: 5.47). 11/2008; 122(5):e950-8. DOI: 10.1542/peds.2008-0390
Source: PubMed

ABSTRACT Children of HIV-infected parents may be affected by their parents' disease even if not infected themselves. Because of advances in HIV treatment that have reduced the risk for vertical HIV transmission from mother to child, more HIV-infected adults are having children. Few studies have examined whether families with an HIV-infected parent experience fears about transmission to children and how they address such fears. In this article, we describe transmission-related fears in families with an HIV-infected parent.
We used semistructured qualitative interviews, conducted in person from March 2004 to March 2005, with 33 HIV-infected parents, 27 minor children who were 9 to 17 years of age, 19 adult children, and 15 caregivers (adult family members or friends who helped care for the children and/or parents) to investigate their fears about HIV transmission. The parents are a subset from the HIV Cost and Services Utilization Study, a study of people in care for HIV throughout the United States. We analyzed the interview transcripts for themes related to transmission fears.
In many of the families, participants identified >or=1 HIV transmission-related fear. Themes included specific fears related to blood contact, bathroom items, kissing/hugging, and food. Families addressed their fears by educating children about modes of HIV transmission and establishing rules or taking precautions to reduce the risk for HIV transmission in the household. HIV-infected parents were also concerned about catching opportunistic infections from a sick child.
Many of the fears experienced by HIV-infected parents and their children were based on misconceptions about modes of HIV transmission. Pediatricians and others who treat these children may be able to offer counseling to allay fears that family members have about household transmission of HIV.

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Available from: Mark Schuster, Sep 27, 2015
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    • "Likewise, Schuster et al. (2005) found that being infected with HIV prompted some parents, particularly Latina mothers, to limit behaviors such as kissing and sharing utensils because of concern about transmission. Qualitative studies support these findings, indicating transmission-related fears were identified in a majority of families, and many of these fears were based on misconceptions about modes of transmission (e.g., Cowgill et al. 2008). "
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    • "We asked parents to recall everything that happened when they disclosed their HIV status to their children, in addition to other topics related to being an HIV positive parent [24, 25]. Interviewers asked parents follow-up questions and prompted them to remember and describe others’ involvement, their decision to disclose, what they had said, and advice they would give other parents. "
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    • "Children were also asked how people get HIV. Youth were screened to ensure that they were aware of their parent's HIV status (see Bogart et al., 2008; Cowgill et al., 2008). All youth indicated that they knew of their parent's HIV infection. "
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