Child to adult: transitional care for young adults with cystic fibrosis

School of Nursing and Midwifery, National University of Ireland-Galway.
British journal of nursing (Mark Allen Publishing) 07/2012; 21(14):850-4. DOI: 10.12968/bjon.2012.21.14.850
Source: PubMed


Managing the transitional care needs of young adults with a complex chronic illness such as cystic fibrosis (CF) as they move from a child-orientated to adult setting has been reported in the literature as challenging and stressful, and may impart additional risks to the young person's health. However, in the Republic of Ireland, which has the highest incidence of CF in the world, the current services provided for children during this transitional period are still reported as underdeveloped. The aim of the author's research was to explore and understand the experience of young people before and after their transitional care, and the factors that both contribute to and hinder that experience. A qualitative approach guided by phenomenological tradition, and using in-depth interviews. The findings suggest that there are a range of needs required for patients during this transitional period, including the need for information, interventions that decrease the negative feelings associated with transition (e.g. distress, anxiety, uncertainty), structured service, and an approach to care that focuses on young adults. The author concludes that health professionals in the clinical setting who have responsibility for young adults in transitional care should focus on these needs to provide a more relevant and effective transition service.

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Available from: Nabeel Al-Yateem, Oct 14, 2014
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    • "Research-based publications have identified the stressful impact for children associated with different healthcare settings. This literature has looked at the impact on growth and development of the child, well-being at later stages in adulthood, and described strategies that might address or reduce the negative impacts of healthcare related stressors (Al-Yateem, 2013; Annunziato et al., 2007; Coyne, 2013; Ekra & Gjengedal, 2012; Rutishauser et al., 2010). However, few studies have explored whether PHPs perceive their healthcare settings as stressful for the children in their care. "
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    ABSTRACT: A better understanding of the needs of adolescents and emerging adults with special health care needs (AEA-SHCNs) is essential to provide health care transition services that represent best practices. The purpose of this systematic review was to evaluate the research on health care transition for AEA-SHCNs from their perspectives. A comprehensive literature review of research publications since 2005 was performed using the PubMed, Cumulative Index to Nursing and Allied Health Literature, and EBSCO databases. Thirty-five studies met the final review criteria. The process of transition from child to adult for AEA-SHCNs is complex. Individuals experiencing the transition desire to be a part of the process and want providers who will listen and be sensitive to their needs, which are often different from others receiving health care at the same facility. More research that considers the voice of the AEA-SHCNs related to transition from pediatric to adult care is needed.
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