ADHD knowledge, perceptions, and information sources: perspectives from a community sample of adolescents and their parents.
ABSTRACT The chronic illness model advocates for psychoeducation within a collaborative care model to enhance outcomes. To inform psychoeducational approaches for ADHD, this study describes parent and adolescent knowledge, perceptions, and information sources and explores how these vary by sociodemographic characteristics, ADHD risk, and past child mental health service use.
Parents and adolescents were assessed 7.7 years after initial school district screening for ADHD risk. The study sample included 374 adolescents (56% high and 44% low ADHD risk) aged, on average, 15.4 (standard deviation = 1.8) years, and 36% were African American. Survey questions assessed ADHD knowledge, perceptions, and cues to action and elicited used and preferred information sources. Multiple logistic regression was used to determine potential independent predictors of ADHD knowledge. McNemar tests compared information source utilization against preference.
Despite relatively high self-rated ADHD familiarity, misperceptions among parents and adolescents were common, including a sugar etiology (25% and 27%, respectively) and medication overuse (85% and 67%, respectively). African American respondents expressed less ADHD awareness and greater belief in sugar etiology than Caucasians. Parents used a wide range of ADHD information sources, whereas adolescents relied on social network members and teachers/school. However, parents and adolescents expressed similar strong preferences for the Internet (49% and 51%, respectively) and doctor (40% and 27%, respectively) as ADHD information sources.
Culturally appropriate psychoeducational strategies are needed that combine doctor-provided ADHD information with reputable Internet sources. Despite time limitations during patient visits, both parents and teens place high priority on receiving information from their doctor.
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ABSTRACT: The Internet often serves as a primary resource for individuals seeking health-related information, and a large and growing number of websites contain information related to developmental disabilities. This paper presents the results of an international evaluation of the characteristics and content of the top 10 ranked results (i.e., not including sponsored results - pay-per-click) returned when one of five terms related to developmental disabilities (i.e., ADHD, autism, down syndrome, learning disability, intellectual disability) was entered into one of six country specific Google online search engines (i.e., Australia (https://www.google.com.au), Canada (https://www.google.ca), Ireland (https://www.google.ie), New Zealand (https://www.google.co.nz), the United Kingdom (https://www.google.co.uk), and the United States (https://www.google.com)) on October 22, 2013. Collectively, we found that international consumers of websites related to developmental disabilities will encounter different websites with differing content and terminology, and should be critical consumers to ensure they locate the information they are seeking.Research in Developmental Disabilities 06/2014; 35(10):2293-2298. DOI:10.1016/j.ridd.2014.05.028 · 3.40 Impact Factor
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ABSTRACT: Objective This study aims to examine trends in studies of teens’ health information behaviour.Methods Eighty-two articles published between 2000 and 2012 were selected and analysed in various aspects: health topics by year, information sources, data collection methods, use of theories and models, collaborative and interdisciplinary efforts and published journals.ResultsFifty-seven per cent of the studies focused on specific health topics, such as sexual health, while the rest covered general health topics. Almost half of the studies examined how teens search for and use health information on the Internet. Surveys were the most popular data collection technique. Only 12.2% were based on a theory or model. About 42% were conducted collaboratively by authors from multiple disciplines.Discussion and Conclusions With the increasing attention to specific health topics and online resources, the health information behaviour of teens has been examined more frequently since the mid-2000s. Its interdisciplinary nature was evidently shown from various disciplines that the authors were affiliated with and the journals of the published studies represented. This study suggests that there should be efforts to reflect new technology tools, apply mixed methods and increase the engagement level of collaboration to evolve this research domain.Health Information & Libraries Journal 03/2014; 31(1). DOI:10.1111/hir.12057 · 0.89 Impact Factor
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ABSTRACT: Although nonadherence research in patients with chronic obstructive pulmonary disease (COPD) lags well behind other diseases, new evidence helps inform understanding about the degree and underlying causes of patient nonadherence, interventions that can improve adherence, and areas of research needed to further progress in improving this problem in patients with COPD. Fewer than half of treatments for COPD, including oxygen supplementation, physical rehabilitation, and medication, are taken as prescribed. Most patients abandon their treatment after an initial start. Nonadherence in turn contributes to rising rates of hospitalization, death, and healthcare costs. The reasons why patients choose not to use their COPD treatments are not fully understood, although depression is clearly a contributing factor. Although a substantial number of studies have tested adherence interventions, few have included COPD patients or addressed polypharmacy in patients with multiple comorbidities. The paucity of research does not reflect the inadequacy of available treatments. Lessons learned from the research outside of COPD and a small number of COPD studies suggest that a collaborative care approach will likely provide the most potential for improving overall care, including management of depression and enhancement of adherence. Exploitation of mobile telephone technology to engage patients in a discussion of their self-care should not be ignored as a potential intervention for COPD patients. Link, http://links.lww.com/COPM/A10.Current opinion in pulmonary medicine 01/2014; DOI:10.1097/MCP.0000000000000027 · 2.96 Impact Factor