Coping skills, strengths and needs as perceived by adult offspring and siblings of people with mental illness: A retrospective study

Psychiatric Rehabilitation Journal (Impact Factor: 1.16). 09/1996; 20(2):24-32. DOI: 10.1037/h0095388


Examined coping skills, needs, and self-perceived strengths gathered through subjective interview data with 10 adult offspring and 10 adult siblings (all Ss aged 27–56 yrs) of people with mental illness (schizophrenia, bipolar disorder, or major depression). Distinctions were made between positive and negative coping skills, and several themes in coping skills were reported, including constructive escape, seeking support, objectifying the illness, acquiring information, spiritual faith, internalization of emotions, self-censoring behavior, and self-isolation. Four themes also emerged from interview data regarding needs: information or explanation, support groups, individual attention and attention to emotions, and inclusion in the treatment process. All Ss had perceived themselves to have grown in a positive way from their experiences, despite the adversities they had endured. Self-perceived strengths reported include independence or self-reliance, ability to create, empathy, resiliency, assertiveness, and spiritual and life perspective. (PsycINFO Database Record (c) 2012 APA, all rights reserved)

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    • "Nonetheless they have asked for help in managing healthy communication with the affected sibling and also asked for counselling on personal issues such as anger management and dealing with other day-to-day stressors. However, in western literature, it has been specifically reported that the siblings mentioned that their emotional issues are to be addressed by their own families and professionals (Friedrich et al., 2008; Kinsella et al., 1996; Sin, 2013; Sin et al., 2012). A few younger siblings in this study expressed their concerns related to fear of heredity. "
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    ABSTRACT: There is a lack of studies on siblings of persons with schizophrenia (SOPS) in Asia. This study aims to explore the needs of SOPS in India. 15 SOPS participated in this qualitative explorative study. All the interviews were audio recorded and later transcribed. Data analysis was carried out using General Inductive Approach. Five themes emerged from the data: managing illness or socio-occupational functioning; follow up services; informational needs; personal needs; and miscellaneous needs. SOPS in India have some distinctive needs. Identifying these needs might help in developing and designing specific psychosocial interventions for better management. Copyright © 2015 Elsevier B.V. All rights reserved.
    Asian Journal of Psychiatry 07/2015; DOI:10.1016/j.ajp.2015.07.011
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    • "The duration of individual interviews and FGD ranged from 30 min to 120 min and it was reported by three studies.33,35,36) Four out of five qualitative studies used audio recording for the data acquisition.33,34,35,36) Three studies used semi structured or topic guide for collecting the data,33,34,35) two studies used questionnaires which included the needs of SOPP,31,37) one study used the descriptive phenomenological approach to understand the subjective experiences and needs of SOPP36) while another study used a brief questionnaire which primarily highlighted issues related to siblings' expectations and attitudes about future care giving of ill siblings which was able to get a few siblings needs.32) "
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    ABSTRACT: Research on caregivers of psychosis has predominantly focused on parents and spouses. Issues related to siblings of persons with psychosis (SOPP) are yet to be evaluated comprehensively. Like parents and spouses, SOPP also share the caregiver burden and have their own issues and needs. This systematic descriptive review aims to identify the types of needs of SOPP in the published literature and gives implications for further practice and research. The primary data search was carried out with predefined protocol in PubMed database and an additional hand search was done in EBSCOhost, ProQuest, Scopus, and PsychINFO. All the searches yielded a total of 862 titles. After screening for necessary inclusion criteria, seven studies were included in the final review. The results are discussed under six major themes that emerged from this review. Six out of seven studies highlighted the need for information on siblings' illness and participation in caregiver support group. Other important needs were illness management or rehabilitation needs; help in managing their own psychosocial issues; treatment related informational needs; and inclusion in treatment process. The socio-demographic details of these studies showed that majority of the participants were female siblings of Caucasian or white British ethnicity and from developed countries. SOPP predominantly have specific needs such as informational and support group needs, which are different in the priority of other primary caregiver needs. Paucity of literature from developing countries and the limitations of the existing studies warrant further systematic research.
    Clinical Psychopharmacology and Neuroscience 08/2014; 12(2):111-23. DOI:10.9758/cpn.2014.12.2.111
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    • "Among those who were satisfied with the care, some of them (18%) were taken care of by grandmothers. The findings shed light on the importance of the extended supportive family relationships as seen in other studies.[272829] "
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    ABSTRACT: Parental mental illness has been found to have an impact on offsprings in their emotional, social, and behavioral aspects of life. To examine the experiences of offsprings of a parent having schizophrenia and to study their resilience. A sample of 45 adults with one parent diagnosed with schizophrenia was selected using purposive sampling. Subjects were assessed using socio-demographic data sheet, semi-structured interview schedule, and Connor-Davidson Resilience Scale. The experiences perceived by them as different from children of healthy parents included negative experiences in social (49%) and emotional aspects (40%), lack of support from the parent who is ill (40%), and burden (66%) in various areas. Majority of the offsprings were satisfied with the parenting received (70%). About 60% of them reported medium resilience, and 24% and 15% reported high and low resilience, respectively. Majority of those with medium and high resilience had supportive relationship with other family members. Social support was the most frequently reported factor that helped them to cope with difficulties. Growing up with a parent having mental illness can have negative impact on offsprings. However, it can also have positive effects in terms of developing resilience in the presence of good support system.
    Indian Journal of Psychological Medicine 04/2013; 35(2):148-53. DOI:10.4103/0253-7176.116243
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