Article

Information and communication technology in patient education and support for people with schizophrenia

Department of Nursing Science, University of Turku, Southwest Hospital District, Turku, Finland.
Cochrane database of systematic reviews (Online) (Impact Factor: 5.94). 10/2012; 10(10):CD007198. DOI: 10.1002/14651858.CD007198.pub2
Source: PubMed

ABSTRACT Information and Communication Technology (ICT) includes the use of computers, telephones, television and radio, video and audio recordings. It consists of all technical means used to handle information and communication. During the last twenty years there has been a growing trend towards the use of ICT for the delivery of education, treatment and social support for people with mental illness. Education about illness and treatment has been found to be a good way to increase a person's awareness of their health. ICT has the potential to improve many aspects of overall care, including: better education and social support; improved information and management of illness; increased access to health services; improved quality of care; better contact and continuity with services and cut costs. Recent studies show that ICT and the web may also support people in their working lives and social relationships plus help cope with depression and anxiety. However, there is a lack of knowledge about the specific effectiveness of ICT for helping people with severe mental health problems such as schizophrenia. This review includes six studies with a total of 1063 people. Although education and support using ICT shows great promise, there was no clear benefit of using ICT (when compared with standard or usual care and/or other methods of education and support) for people with severe mental illness. However, the authors of the review suggest that this should not put off or postpone future high quality research on ICT, which is a promising and growing area of much importance. This Plain Language Summary has been written by Benjamin Gray, Service User and Service User Expert, Rethink Mental Illness. Email: ben.gray@rethink.org

Download full-text

Full-text

Available from: Lauri Kuosmanen, Aug 28, 2015
0 Followers
 · 
261 Views
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Around 20% of those who seek health information online, search specifically for mental health. However, little is known about the nature of the online health information offered by two European countries, Finland and Greece, which are characterized by markedly differing levels of Internet access and online health information seeking. This study aims to describe and compare two European, non-English language websites (Finnish and Greek) that provide information about schizophrenia or related conditions. The first 20 results from four search terms (searched in Finnish and Greek) in the Web search engine 'Google' were screened. A total of 160 websites were retrieved (80 Finnish, 80 Greek) and evaluated using a preformulated coding system which consisted of websites' indicators, such as: types, characteristics, accountability, interactivity, aesthetics and content. Differences between websites were evaluated with Chi-Square or Fisher's Exact tests for categorical data and independent t-tests for parametric data. Twenty-four Finnish and thirty-four Greek websites (36% in total) were included. Almost two-thirds (62%, n=36) were owned by an organization, compared to 17% (n=10) by an individual. In both countries, aesthetics had the highest score (possible range 0--4, mean = 2.60, SD =.62), while interactivity the lowest (range 0--5, mean = 1.79, SD = .87). There were no statistically significant differences among the accountability, interactivity and aesthetics scores of the Finnish and Greek websites. All assessed indicators suggest there is a need to improve Finnish and Greek online information about schizophrenia or related conditions. The poor website interactivity is of particular concern given the challenges faced by the target group. The findings can be used to guide the development and dissemination of online mental health information aimed at Finnish and Greek online health-seekers.
    BMC Medical Informatics and Decision Making 08/2013; 13(1):98. DOI:10.1186/1472-6947-13-98 · 1.50 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: OBJECTIVE The aim of this review was to investigate to what extent information technology may support self-management among service users with psychotic disorders. The investigation aimed to answer the following questions: What types of e-mental health self-management interventions have been developed and evaluated? What is the current evidence on clinical outcome and cost-effectiveness of the identified interventions? To what extent are e-mental health self-management interventions oriented toward the service user? METHODS A systematic review of references through July 2012 derived from MEDLINE, PsycINFO, AMED, CINAHL, and the Library, Information Science and Technology database was performed. Studies of e-mental health self-management interventions for persons with psychotic disorders were selected independently by three reviewers. RESULTS Twenty-eight studies met the inclusion criteria. E-mental health self-management interventions included psychoeducation, medication management, communication and shared decision making, management of daily functioning, lifestyle management, peer support, and real-time self-monitoring by daily measurements (experience sampling monitoring). Summary effect sizes were large for medication management (.92) and small for psychoeducation (.37) and communication and shared decision making (.21). For all other studies, individual effect sizes were calculated. The only economic analysis conducted reported more short-term costs for the e-mental health intervention. CONCLUSIONS People with psychotic disorders were able and willing to use e-mental health services. Results suggest that e-mental health services are at least as effective as usual care or nontechnological approaches. Larger effects were found for medication management e-mental health services. No studies reported a negative effect. Results must be interpreted cautiously, because they are based on a small number of studies.
    Psychiatric services (Washington, D.C.) 10/2013; 65(1). DOI:10.1176/appi.ps.201300050 · 1.99 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Digital technologies are increasingly directed at improved monitoring, management and treatment of mental health. However, their potential contribution to social networks and self-management support for people diagnosed with a serious mental illness has rarely been considered. This review and meta-synthesis aimed to examine the processes of engagement and perceived relevance and appropriateness of telehealth interventions for people with a diagnosis of schizophrenia. The review addresses three key questions. How is the use of digital communications technologies framed in the professional psychiatric literature? How might the recognised benefits of telehealth translate to people with a diagnosis of schizophrenia? What is the user perspective concerning Internet information and communication technologies? A critical interpretive synthesis (CIS) of published findings from quantitative and qualitative studies of telehealth interventions for people with a diagnosis of schizophrenia. Most studies were of an exploratory nature. The professional discourse about the use of different technologies was overlain by concerns with surveillance and control, focusing on the Internet as a potential site of risk and danger. The critical synthesis of findings showed that the key focus of the available studies was on the delivery of existing traditional approaches (e.g. improving medications adherence, provision of medical information about the condition, symptom monitoring and cognitive behavioural therapy). Even though it was clear that the internet has considerable potential in terms of accessing and utilising lay support the potential of communication technologies in mobilising of resources for personal self-management or peer support was a relatively absent or hidden a focus of the available studies. Based on an interpretive synthesis of available studies, people with a diagnosis of schizophrenia or psychosis use the Internet primarily for the purposes of disclosure and information gathering. Empowerment, regulation and surveillance emerged as the key dimensions of engagement (or not) with telehealth interventions. The findings suggest that telehealth interventions are disproportionately used by particular patient groups (e.g.women, people who are employed). Further research needs to ascertain the mechanisms by which telehealth interventions may be potentially beneficial or harmful for engagement and management to people with a diagnosis of schizophrenia.
    BMC Psychiatry 11/2013; 13(1):279. DOI:10.1186/1471-244X-13-279 · 2.24 Impact Factor
Show more