"We are all there silently coping." The hidden experiences of parents of adults with Asperger syndrome

School of Psychology, Bangor University, Brigantia Building, Penrallt Road, Bangor LL57 2AS, Wales, UK. g.m.griffi
Journal of Intellectual & Developmental Disability (Impact Factor: 1.02). 08/2012; 37(3):237-47. DOI: 10.3109/13668250.2012.701729
Source: PubMed

ABSTRACT The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.
Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).
Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.
The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

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