Participation of mental health consumers in research: Training addressed and reliability assessed
ABSTRACT A call for active inclusion of consumers in research; recognising and valuing the knowledge that arises through lived experience, is made in the literature. However, genuine inclusion of consumers as members of the research team remains rare. Opponents present two barriers: lack of required knowledge and skills and lack of capacity to conduct rigorous research.
This study involved a collaborative process to develop training materials for consumer researchers. Reliability of self-report outcome data collected by five trained consumers was then examined.
Quantitative results suggest that trained consumers can facilitate self-report interviews to the high standard expected by the general research community.
This study provides both methods and resources to extend occupational therapy consumer-centred practice into the realm of research.
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ABSTRACT: A self-report instrument of mental health recovery is needed both to facilitate collaborative, recovery-oriented practice and measure recovery-focused outcomes. The Recovery Assessment Scale - Domains and Stages (RAS-DS) has been developed to simultaneously fulfill these goals. The aim of this study was to test the feasibility and measurement properties of the RAS-DS. Feasibility was examined by 58 consumer-staff pairs volunteering from 3 non-government organisations. Consumers completed the RAS-DS, discussed it with staff, and then both completed Usefulness Questionnaires. The psychometric properties were examined using Rasch analysis with the data from these consumer participants and from additional participants recruited from two Partners in Recovery programs (N=324). Over 70% of consumers reported taking 15 minutes or less to complete the RAS-DS and rated the instrument as easy or very easy to use. Qualitative data from both consumers and staff indicated that, for most, the RAS-DS was an easy to use, meaningful resource that facilitated shared understandings and collaborative goal setting. However, for a very small number of consumers, the instrument was too confronting and hard to use. Rasch analysis demonstrated evidence for excellent internal reliability and validity. Raw scores were highly correlated with Rasch-generated overall scores and thus no transformation is required, easing use for clinicians. Preliminary evidence for sensitivity to change was demonstrated. The results provide evidence of the feasibility and psychometric strengths of the RAS-DS. Although further research is required, the RAS-DS shows promise as a potential addition to the national suite of routine outcome measures. © The Royal Australian and New Zealand College of Psychiatrists 2014.Australian and New Zealand Journal of Psychiatry 12/2014; DOI:10.1177/0004867414564084 · 3.77 Impact Factor
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ABSTRACT: Historically, consumers of mental health services have not been given meaningful roles in research and change efforts related to the services they use. This is quickly changing as scholars and a growing number of funding bodies now call for greater consumer involvement in mental health services research and improvement. Amidst these calls, community-based participatory research (CBPR) has emerged as an approach which holds unique promise for capitalizing on consumer involvement in mental health services research and change. Yet, there have been few discussions of the value added by this approach above and beyond that of traditional means of inquiry and enhancement in adult mental health services. The purpose of this paper is to add to this discussion an understanding of potential multilevel and multifaceted benefits associated with consumer-involved CBPR. This is accomplished through presenting the first-person accounts of four stakeholder groups who were part of a consumer-involved CBPR project purposed to improve the services of a local community mental health center. We present these accounts with the hope that by illustrating the unique outcomes associated with CBPR, there will be invigorated interest in CBPR as a vehicle for consumer involvement in adult mental health services research and enhancement.American Journal of Community Psychology 09/2014; 54(3-4). DOI:10.1007/s10464-014-9677-8 · 1.74 Impact Factor
Australian Occupational Therapy Journal 08/2014; 61(4). DOI:10.1111/1440-1630.12152 · 0.83 Impact Factor