Understanding and addressing the impact of autism on the family

Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA, USA.
LDI issue brief 04/2012; 17(7):1-4.
Source: PubMed


Children and adults with autism spectrum disorders (ASDs) have needs that challenge our systems of care. A new study estimates ASDs cost more than $126 billion each year in the U.S.--an amount that reflects both the costs of providing educational and medical services as well as the costs of not intervening early and effectively enough to prevent lifelong disability. This Issue Brief summarizes the implications of childhood autism for parental employment and earnings, and analyzes whether community-based services can reduce costly, psychiatric hospitalizations of children with ASDs.

2 Reads
  • Journal of the American Academy of Child and Adolescent Psychiatry 10/2012; 51(10):987-9. DOI:10.1016/j.jaac.2012.07.012 · 7.26 Impact Factor
  • [Show abstract] [Hide abstract]
    ABSTRACT: Children with an autism spectrum disorder (ASD) experience better short-term and long-term outcomes if they participate in interventions aimed at ameliorating ASD core deficits. Despite that the preschool setting has been suggested as an efficient and effective context for implementing these early ASD interventions, improving core deficits is rarely the focus of the status quo ASD preschool experience. In this review, we explain the relative benefits of conducting interventions aimed at improving ASD core deficits in the preschool setting and how often preschool-based ASD core deficit intervention studies are conducted. Promising recent preschool-based interventions are reviewed. We conclude with suggestions for how to increase the momentum of this research and have these interventions permeate the school context.
    International Review of Research in Mental Retardation 01/2014; 47:99-150. DOI:10.1016/B978-0-12-800278-0.00004-X
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: We investigated the parental changes and challenges that anticipated and followed the communication of the diagnosis of autism. The methodology was a collaborative and participatory case study focused on the perceptions of 31 families with a child on the autism spectrum enrolled in a no-profit Association in the Province of Monza and Brianza (Italy). The aim of the research was collecting information for the establishment of a local permanent observatory, monitoring the needs of families with children with autism, and identifying possible operational proposals to implement the quality of the territorial services, through the enhancement of the experiences, perceptions and representations of families, analysing their points of view. Methods included semi structured interviews and questionnaires; the data were analysed through the interpretative phenomenological analysis method. The findings show that parents need to be supported in order to avoid crisis and confusion on the child’s future perspectives, as consequence of the diagnosis of autism. The paper draws out implications for further studies that wish to analyse other family perspectives.
    Journal of Child and Family Studies 04/2014; 24(4). DOI:10.1007/s10826-014-9917-4 · 1.42 Impact Factor
Show more