Growing health disparities for persons who are aging with intellectual and developmental disabilities: the social work linchpin.

Department of Pediatrics, University of Rochester Medical Center, NY 14642, USA.
Journal of Gerontological Social Work 02/2012; 55(2):175-90. DOI: 10.1080/01634372.2011.644030
Source: PubMed

ABSTRACT Similar to the general population, adults with intellectual and developmental disabilities (IDD) are living into their 70s and beyond. Health care disparities have been well-documented for this vulnerable and underserved population. Social workers are often responsible for assessment, coordination of care, and negotiation of needed services for people with IDD. This article explores the challenges facing social workers in meeting the growing health and social needs of aging adults with IDD and their families. Trends in social work practice and gaps in education are discussed as they relate to addressing and reducing current health disparities.

Download full-text


Available from: Laura M Robinson, Apr 07, 2015
1 Follower
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is growing a concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) are ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population, and have historically been less of a priority in ADS and residential services for people with IDD. This paper discusses how ADS may be a great pathway for delivering end-of life care for the IDD population and will explore both the development of a training curriculum intervention with ADS and hospice/palliative care providers as well as report findings from a pilot of the training curriculum. Implications and recommendations will also be examined.
    OMEGA--Journal of Death and Dying 03/2015; 70(4). DOI:10.1177/0030222815573724 · 0.44 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: This article uses a descriptive case study design to examine the potential of narrative therapy as a direct intervention for adults with moderate to severe intellectual disabilities, autism and/or severe communication limitations. Archival clinical data on four individuals who received a form of social constructionist narrative therapy are examined for goal attainment. The data were analysed qualitatively with specific input from individuals, their families and carers. Findings indicate improvements in quality of life through reductions in situational and environmental anxieties, and in coping with grief and loss. The results suggest that narrative therapy techniques can be beneficial in assisting individuals with severe intellectual disability to achieve meaningful and persistent improvements in their life.
    Australian Journal of Rehabilitation Counseling 07/2012; 18(1):37-49. DOI:10.1017/jrc.2012.6
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: The number of older adults with intellectual and developmental disabilities(IDD) has increased rapidly in the United States as part of the general "graying"of the country. This has presented challenges in maintaining the quality of life and health for these individuals in later years. Issues including diagnostic overshadowing(the tendency to overlook symptoms of mental or physical illness as causes for decline), lack of knowledge about aging in adults with IDD,and health care disparities are discussed in this article along with recommendations for clinicians to help them meet this growing challenge.
    Journal of Psychosocial Nursing and Mental Health Services 01/2013; 51(1):15-8. DOI:10.3928/02793695-20121218-02 · 0.87 Impact Factor