Development and usability testing of a parent decision support tool for the neonatal intensive care unit.
ABSTRACT In this paper we present the development and evaluation of a parent decision support tool for a neonatal intensive care unit (NICU), known as PPADS or Physician and Parent Decision Support. The NICU interprofessional (IP) team uses advanced technology to care for the sickest infants in the hospital, some at the edge of viability. Many difficult care decisions are made daily for this vulnerable population. The PPADS tool, a computerized decision support system, aims to augment current NICU decision-making by helping parents make more informed decisions, improving physician-parent communication, increasing parent decision-making satisfaction, decreasing conflict, and increasing decision efficiency when faced with ethically challenging situations. The development and evaluation of the PPADS tool followed a five step methodology: assessing the clinical environment, establishing the design criteria, developing the system design, implementing the system, and performing usability testing. Usability testing of the PPADS tool with parents of neonates who have graduated (survived) from a tertiary level NICU demonstrates the usefulness and ease of use of the tool.
Conference Paper: Usefulness analysis of a Clinical Data Repository design[Show abstract] [Hide abstract]
ABSTRACT: The perceived usefulness of a Clinical Data Repository (CDR) prototype in a hospital setting was assessed by clinicians to determine whether they would find it helpful for their clinical and research work. The CDR automatically collects and stores clinical data in real time from patient monitoring devices, clinical information systems, laboratory systems, and the Health Records Department in a de-identified, easily extractable format for secondary uses. A secure online survey was distributed to physicians, research institute investigators, and research institute coordinators at the Children's Hospital of Eastern Ontario (CHEO) through email. According to the survey responses, participants felt the CDR was a useful tool, showed interest in it, and thought it would be important to have for future work. To illustrate how the CDR could be used in a clinical setting we have provided a sample clinical application; a tool for engaging physicians and parents in discussion about the clinical progress and prognosis of infants in the Neonatal Intensive Care Unit (NICU).Medical Measurements and Applications Proceedings (MeMeA), 2013 IEEE International Symposium on; 01/2013