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Available from: Markella Boudioni, Jul 02, 2015
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    ABSTRACT: There is a considerable knowledge base about the information needs of patients with cancer (and their relatives and friends). Those needs will vary according to the disease, the stage of disease, the patient and his or her age, social class and culture. Lack of information may lead to increased anxiety and distress, may impact negatively on the patient's satisfaction and may influence a patient's treatment choices. Other articles in this special edition deal with psychosocial interventions and complementary therapies for cancer patients and explore their efficacy. The reality is that these are unlikely to be made available to all cancer patients for reasons of cost and practicability. Information, however, is a relatively cheap intervention that could--and should--be part of standard care. This article explores some of the research about the provision of information for cancer patients.
    European Journal of Cancer 11/1999; 35(11):1587-91. DOI:10.1016/S0959-8049(99)00195-1 · 4.82 Impact Factor
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    ABSTRACT: To explore why cancer patients do not want or seek information about their condition beyond that volunteered by their physicians at times during their illness. Qualitative study based on in-depth interviews. Outpatient oncology clinics at a London cancer centre. 17 patients with cancer diagnosed in previous 6 months. Analysis of patients' narratives to identify key themes and categories. While all patients wanted basic information on diagnosis and treatment, not all wanted further information at all stages of their illness. Three overarching attitudes to their management of cancer limited patients' desire for and subsequent efforts to obtain further information: faith, hope, and charity. Faith in their doctor's medical expertise precluded the need for patients to seek further information themselves. Hope was essential for patients to carry on with life as normal and could be maintained through silence and avoiding information, especially too detailed or "unsafe" information. Charity to fellow patients, especially those seen as more needy than themselves, was expressed in the recognition that scarce resources-including information and explanations-had to be shared and meant that limited information was accepted as inevitable. Cancer patients' attitudes to cancer and their strategies for coping with their illness can constrain their wish for information and their efforts to obtain it. In developing recommendations, the government's cancer information strategy should attend to variations in patients' desires for information and the reasons for them.
    BMJ Clinical Research 05/2000; 320(7239):909-13. DOI:10.1136/bmj.320.7239.909 · 14.09 Impact Factor
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    ABSTRACT: OBJECTIVE: To explore why cancer patients do not want or seek information about their condition beyond that volunteered by their physicians at times during their illness. DESIGN: Qualitative study based on in-depth interviews. SETTING: Outpatient oncology clinics at a London cancer center. PARTICIPANTS: 17 patients with cancer diagnosed in previous 6 months. Main outcome measures Analysis of patients' narratives to identify key themes and categories. RESULTS: While all patients wanted basic information on diagnosis and treatment, not all wanted further information at all stages of their illness. Three overarching attitudes to their management of cancer limited patients' desire for and subsequent efforts to obtain further information : faith, hope, and charity. Faith in their doctor's medical expertise precluded the need for patients to seek further information themselves. Hope was essential for patients to carry on with life as normal and could be maintained through silence and avoiding information, especially too detailed or "unsafe" information. Charity to fellow patients, especially those seen as more needy than themselves, was expressed in the recognition that scarce resources-including information and explanations-had to be shared and meant that limited information was accepted as inevitable. CONCLUSIONS: Cancer patients' attitudes to cancer and their strategies for coping with their illness can constrain their wish for information and their efforts to obtain it. In developing recommendations, the government's cancer information strategy should attend to variations in patients' desires for information and the reasons for them.
    Western Journal of Medicine 08/2000; 173(1):26-31. DOI:10.1136/ewjm.173.1.26