Relationship between caregiver burden and health-related quality of life

Center for Cooperative Studies in Health Services, Edward A. Hines, Jr., Veterans Administration Hospital, Hines, IL 60607, USA.
The Gerontologist (Impact Factor: 3.21). 11/1999; 39(5):534-45. DOI: 10.1093/geront/39.5.534
Source: PubMed

ABSTRACT This study tested the cross-sectional relationship between caregiver burden and health-related quality of life (HRQOL) among 1,594 caregivers of veterans identified to qualify for formal home care. A two-stage model found that familial relationship, coresidence, and low income predicted objective burden. Coresidence also predicted subjective burden, whereas being African American was protective. In the full model, spousal relationship, low income, and burden were associated with poor HRQOL scores. Total variance explained in HRQOL ranged from 14% to 29%, with objective burden contributing more than subjective burden. These findings suggest a direct effect of objective burden on caregiver HRQOL, indicating a need among caregivers for assistance in caring for disabled family members.

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Available from: Anita Giobbie-Hurder, Sep 22, 2014
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    • "For the five subscales Physical Functioning, Role-Physical, Bodily Pain, Social Functioning and Role- Emotional the responses are combined to generate a score form 0-100, where the score of 100 indicates best health without any limitations or disabilities. The subscales General Health, Vitality and Mental Health are bipolar and a score in the mid-range shows no limitation or disability, while a score of 100 can only be received if respondents report positive states (Hughes et al. 1999). Furthermore the higher-order summary scores: Physical Component Summary (PCS) and Mental Component Summary (MCS) (Ware, JR. et al. 1995) were calculated to compare these scores to the average German Population. "
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    ABSTRACT: AimThe aim of this study was to analyse the health-related quality of life (HRQOL) of primary family caregivers in comparison to the reference values of the average population. Subjects and methodsData collection took place in the Werra-Meißner district in 2009 with a response rate of 102 primary family caregivers of frail elderly people. The health-related quality of life was measured with the Short Form 36 health survey (SF 36) and compared with the German reference values. ResultsCompared to the health values of the normative sample, primary caregivers show significantly lower rates in all dimensions of health-related quality of life. In particular, caregivers between the ages of 53 to 61 report extremely low health values. Caregiving women compared to non-caregiving women have highly significant differences in all subscales of the SF 36. Caregiving men also report highly significant differences to non-caregiving men in all dimensions of the SF 36 except for Physical Functioning and General Health (p < 0.01). Caregivers in general and especially caregiving women aged 53 to 61 (midlife) were identified as at-risk groups for poor health. The latter report lower vitality and well-being, which may be a consequence of both social isolation and social impacts from multiple role demands. ConclusionThe identified high-risk groups of family caregivers, caregivers in midlife and especially caregiving women in midlife, should be supported by social measures, e.g., training courses for family caregivers, particularly in their home setting, and various types of respite care in order to sustain their health. KeywordsFamily caregiver–Health-related quality of life–SF 36–Gender differences
    Journal of Public Health 06/2010; 19(3):269-280. DOI:10.1007/s10389-010-0369-z
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    • "To our knowledge, no other studies have simultaneously examined the effect of changes in patient physical and neurological functioning on caregiver health. Other authors have suggested that caregiver health is predicted more by caregiver burden than by changes in patient functional status (Hughes et al., 1999; McCullagh et al., 2005). Future studies will be needed to address the possible link between changes in patient functioning, caregiver burden, and caregiver health. "
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    ABSTRACT: Caregivers of stroke patients may adapt to changes in patient functioning over time. If adaptation occurs, then caregiver burden and health may be influenced more by worsening in patient functioning than by static levels of functioning. This study examines the relationship between patients' baseline and changes in functioning and caregivers' subjective and objective burden as well as their health. Only stroke patients who had caregivers were included in this analysis (N = 356). Stroke patients (n = 281) or their proxies (n = 75) were interviewed within 4 months of hospital discharge and patients' medical records were abstracted. The primary caregiver also was interviewed at approximately the same time as the patient or proxy (N = 356). In all but one of the 75 proxy cases, the proxy was the patient's caregiver. Binomial and ordinal logistic regression models were used. Declining patient neurological functioning predicted greater objective burden and subjective burden relating to consequences for caregivers' personal lives, but it did not predict caregiver health. The impact a patient's stroke has on a caregiver's personal life and the number of hours spent caring for the patient appear to be a function of the changes of the patient's status over time rather than a function of a "snapshot" of their functioning at baseline. If these results are confirmed, interventions to protect caregivers may be indicated for stroke patients who continue to decline after hospital discharge.
    The Gerontologist 11/2008; 48(5):573-83. DOI:10.1093/geront/48.5.573
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    • "ple , about 88% of the informal caregivers provide care to a family member ( partner , parent , children , sister , or brother ) . Previous research has shown that providing informal care to close family members involves a relatively larger negative subjective burden ( both physically and emotionally ) than providing care to non - family members ( Hughes et al . , 1999 ; Kramer , 1997 ) . If this evidence is confirmed , a stronger inverse relationship between hours of provided informal care and well - being will be found for informal caregivers who are family of the care recipients than for informal caregivers who are not ."
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    ABSTRACT: This paper estimates the monetary value of providing informal care by means of a well-being valuation method. This is done by assessing the compensating variation necessary to maintain the same level of well-being after an informal caregiver provides an extra hour of informal care. The informal caregiver's well-being is proxied by the answer to two subjective well-being questions that were posed in a questionnaire answered by 865 Dutch informal caregivers between the end of 2001 and the beginning of 2002. In the econometric analysis, a distinction is made between the care recipients who are and the ones who are not a family member of the informal caregiver. The results indicate that an extra hour of informal care is worth about 9 or 10 Euros. This equals 8 or 9 Euros if the care recipient is a family member and about 7 or 9 Euros if not. When applying the contingent valuation method to the same sample, the value obtained was 10.52 Euros per hour. This paper concludes that the well-being valuation method is a useful complement to the more traditional valuation methods in the health economics literature in general and more particularly for the economic valuation of informal care: it includes all costs and effects associated with providing care from the perspective of the informal caregiver, it is relatively cheap to implement, and it offers an additional possibility to determine the convergent validity of the different monetary valuation methods.
    Health Economics 11/2007; 16(11):1227-44. DOI:10.1002/hec.1224
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