Article

Quality of life of adults with mental retardation/developmental disabilities who live with family.

Waisman Center and School of Social Work, University of Wisconsin, 1500 Highland Avenue, Madison, WI 53705, USA.
Mental Retardation and Developmental Disabilities Research Reviews (impact factor: 3.8). 02/2001; 7(2):105-14. DOI:10.1002/mrdd.1015
Source: PubMed

ABSTRACT In this paper, we review the literature related to the quality of life of adults with mental retardation/developmental disabilities (MR/DD) who live at home with their families. We examine the nature of the relationships between adults with MR/DD and their parents and siblings, the social worlds of adults with MR/DD, age-related functional and health issues that affect their quality of life, the range of services and supports provided to them, and familial efforts to plan for their continued well-being when parental care is no longer viable. Individual characteristics associated with these dimensions and/or more compromised quality of life profiles are identified. The paper concludes with recommendations for expanded research on the quality of life of adults with MR/DD who live in the parental home, a topic which has received markedly less attention than the quality of life of adults who live in publicly supported residential settings. MRDD Research Reviews 7:105-114, 2001.

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Keywords

adults
 
age-related functional
 
continued well-being
 
familial efforts
 
families
 
health issues
 
markedly less attention
 
mental retardation/developmental disabilities
 
MR/DD
 
parental care
 
parental home
 
parents
 
residential settings
 
services
 
social worlds
 

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