Quality of life of adults with mental retardation/developmental disabilities who live with family.
ABSTRACT In this paper, we review the literature related to the quality of life of adults with mental retardation/developmental disabilities (MR/DD) who live at home with their families. We examine the nature of the relationships between adults with MR/DD and their parents and siblings, the social worlds of adults with MR/DD, age-related functional and health issues that affect their quality of life, the range of services and supports provided to them, and familial efforts to plan for their continued well-being when parental care is no longer viable. Individual characteristics associated with these dimensions and/or more compromised quality of life profiles are identified. The paper concludes with recommendations for expanded research on the quality of life of adults with MR/DD who live in the parental home, a topic which has received markedly less attention than the quality of life of adults who live in publicly supported residential settings. MRDD Research Reviews 7:105-114, 2001.
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ABSTRACT: Thirty mothers of transition‐aged young adults (18–24 years) with severe intellectual disability were interviewed regarding their son or daughter's quality of life. All mothers completed the standardised Quality of Life Questionnaire and responded to several open‐ended questions to further delineate quality of life for their child. Mothers were asked to describe quality of life for their young adult child and to evaluate their child's quality of life. Most mothers (73%) mentioned recreation, activities, and hobbies as important components of their young adult child's quality of life. Other common responses included having their son or daughter's basic needs met (53%), having their son or daughter belong to a social network (40%), and having their son or daughter be happy or content (37%). Less common responses included work (7%) for their son or daughter, communication capabilities (10%), health (13%), and consistency (17%) in their son or daughter's life. Mothers' visions for their sons and daughters, environmental and social supports for family members, and family quality of life issues are explored. Discussion focuses on contributions of this study to the burgeoning quality of life literature.Journal of Intellectual & Developmental Disability 01/2004; 29(2):131-146. · 1.02 Impact Factor
- Hacia la Promoción de la Salud. 07/2010; 15(1):13-28.
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ABSTRACT: Abstract Individuals with intellectual and developmental disabilities (IDD) in the U.S. predominantly live with their family caregivers. As care delivery and support systems vary widely globally, consideration of caregiver outcomes specifically in the U.S. context is needed. A systematic literature review was conducted to identify U.S. family caregiver outcomes and their association with existing services and supports for family caregivers of adults with IDD. Twenty-four articles were compiled using the PubMed, Web of Knowledge, PsychInfo, and CINAHL databases. Studies report economic, mental, and physical health outcomes from caregiving roles. The need for comprehensive caregiver assessment is discussed. Understanding and responding to the changing needs of family caregivers is vital to the U.S. disability service system to effectively prioritize formal resources and services.Intellectual and Developmental Disabilities 04/2014; 52(2):147-59. · 1.13 Impact Factor