Living with a schizophrenic patient: a comparative study of burden as it affects parents and spouses.

Universität Leipzig, Klinik und Poliklinik für Psychiatrie, Johannisallee 20, D-04317 Leipzig, Germany.
Psychiatry Interpersonal & Biological Processes (Impact Factor: 3.18). 02/2002; 65(2):110-23. DOI: 10.1521/psyc.
Source: PubMed

ABSTRACT Based on the analysis of 42 in-depth interviews, this article highlights different aspects of the subjective burden experienced by parents and spouses of patients suffering from schizophrenia. The onset of a schizophrenic disorder and acute episodes during the later course of the disease lead to considerable emotional distress for the patients' caregivers. In everyday life with the patient, parents and spouses experience a comparatively less dramatic chronic burden, which nevertheless can severely affect their living situation and well-being. Caregivers often feel disappointed and dissatisfied with the information and cooperation offered by psychiatric institutions. Parents and spouses perceive the caregiver burden differently, although there are some apparent similarities. The study reveals that the symptoms of a schizophrenic disorder as well as different family roles contribute to the subjective burden of parents and spouses. Supportive assistance for schizophrenic patients' caregivers should address their particular needs more adequately.

1 Bookmark
  • [Show abstract] [Hide abstract]
    ABSTRACT: AimsThe study assessed the alcoholism‐related financial burden borne by informal care‐givers and relatives of German alcoholic patients. DesignBy using an exploratory approach, care‐giver burden was assessed both prior to and 12 months after detoxification and withdrawal. Quality‐of‐life data for care‐givers collected during follow‐up were used to calculate the number of quality‐adjusted life years (QALYs) gained by alcoholics’ family members while their relatives are undergoing treatment. ParticipantsForty‐eight informal care‐givers and relatives of alcoholic patients. SettingIn‐patient and out‐patient departments of three psychiatric university hospitals in Germany. MeasurementsExpenditures of families related directly to the addiction disorder of alcoholic patients, quality of life of care‐givers, relapses of patients. FindingsFamilies’ expenditures related directly to their addicted member's alcoholism decreased from an average of €676.44 per month (or 20.2% of the total pre‐tax family income) at baseline to an average of €145.40 per month at 12 months after the beginning of treatment. The average time spent caring for the affected family member was reduced from 32.3 hours per month to 8.2 hours per month (P = 0.0109), and quality‐of‐life total scores increased from 60.6 to 68.0. The total gain in QALYs for family members was 0.108. When weighed against the average cost of the alcoholism treatment, the cost of one QALY for care‐giving family members was €20 398 on average. Conclusions Among the families of German alcoholics who receive detoxification, there is a substantial reduction in family expenditures, time spent caring and an increase in quality of life at 1 year. These are important but often neglected additional measures of the burden on family members and also treatment benefits.
    Addiction 01/2013; 108(1). · 4.60 Impact Factor
  • Source
    [Show abstract] [Hide abstract]
    ABSTRACT: Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding "caregiver burden" in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.
    Schizophrenia research and treatment. 01/2014; 2014:368215.
  • [Show abstract] [Hide abstract]
    ABSTRACT: Hintergrund Die Steigerung des „empowerment“ ist eines der Ziele psychoedukativer Angehörigengruppen, wurde aber bisher nicht als Outcome-Kriterium in die Evaluation einbezogen. Material und Methode In einem naturalistischen Setting nahmen 54 Angehörige von schizophren oder schizoaffektiv Erkrankten an einem psychoedukativen Gruppenprogramm mit 8 Sitzungen teil. Es erfolgten eine Prä- und Postevaluation mit einem kurzen Fragebogen zum Empowerment und einem Wissensfragebogen (WFB). Ergebnisse Empowerment und Wissen der Angehörigen konnten signifikant erhöht werden (p Schlussfolgerungen Die Ergebnisse unterstreichen die Wichtigkeit von psychoedukativen Angehörigengruppen im Rahmen der Behandlung von Patienten mit Schizophrenie. Es profitieren nicht nur die Betroffenen durch die Reduktion der Rückfallraten, sondern auch die Angehörigen durch eine Steigerung von Wissen und Empowerment.
    Psychotherapeut 07/2012; 57(4):313-318. · 0.78 Impact Factor