[Standardizing terminology in pediatric oncology--the basic data set].
ABSTRACT In the context of more than 20 therapy optimizing clinical trials in pediatric oncology an extensive documentation with a big number of case report forms was developed in the last 20 to 25 years. Across these trials same information is partially captured in different terminological ways, by which documentation about patients in the clinics is made more difficult.
Terminology of therapy optimizing clinical trials of German Society for Pediatric Oncology and Hematology (GPOH) is standardized by a central "standards committee".
As a first result the basic data set of GPOH could be revised and made available in internet via http://www.dospo.uni-hd.de.
A basis of a unique documentation language in pediatric oncology is available for German speaking regions.
- SourceAvailable from: Sebastian Garde[show abstract] [hide abstract]
ABSTRACT: In the era of eHealth the electronic patient record is increasingly regarded as part of a collaborative environment. To efficiently support the documentary tasks and analyses a cooperative documentation infrastructure which allows multiple use and shared entry of data is necessary. The objective of this paper is to introduce a method for systematically planning such a cooperative documentation environment. It consists of the steps: analyse the prevailing documentation infrastructure, provide terminology, provide documentation management, plan the logical architecture and provide all necessary tools. The steps can be formally specified so that parameters can be automatically controlled and the environment can be updated more easily.Studies in health technology and informatics 02/2005; 116:367-72.