[Standardizing terminology in pediatric oncology--the basic data set].
ABSTRACT In the context of more than 20 therapy optimizing clinical trials in pediatric oncology an extensive documentation with a big number of case report forms was developed in the last 20 to 25 years. Across these trials same information is partially captured in different terminological ways, by which documentation about patients in the clinics is made more difficult.
Terminology of therapy optimizing clinical trials of German Society for Pediatric Oncology and Hematology (GPOH) is standardized by a central "standards committee".
As a first result the basic data set of GPOH could be revised and made available in internet via http://www.dospo.uni-hd.de.
A basis of a unique documentation language in pediatric oncology is available for German speaking regions.
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ABSTRACT: Cancer is the second leading cause of death in children and survivors require life time follow-up. There is a growing recognition of the need to base cancer control policies on accurate, detailed and timely information on cancer management and outcomes. Coordination and central documentation ensure quality of treatment and permit clinical and scientific investigations. The combined data thus obtained create a comprehensive picture of disease, leading to more effective prevention and cure. Medical information can be gathered, processed and analyzed in different ways and the importance of precise language cannot be overestimated. All medical activity arises from the ability to observe and communicate intelligibly and a lack of standardized documentation leads to insufficient integration of clinical work. The Minimal Standard data set is the result of a global effort to establish a common structure and vocabulary for electronic reports. In addition, information technology combines research aspects of decision support and clinical documentation, allowing formal representation of general protocols, calculating of a particular therapy for a patient, data acquisition in the clinics. Our aim in this papers is to stress the need for standard pediatric oncology data and information technology as an approach to cancer care management.Asian Pacific journal of cancer prevention: APJCP 01/2011; 12(1):323-5. · 1.50 Impact Factor
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ABSTRACT: In the era of eHealth the electronic patient record is increasingly regarded as part of a collaborative environment. To efficiently support the documentary tasks and analyses a cooperative documentation infrastructure which allows multiple use and shared entry of data is necessary. The objective of this paper is to introduce a method for systematically planning such a cooperative documentation environment. It consists of the steps: analyse the prevailing documentation infrastructure, provide terminology, provide documentation management, plan the logical architecture and provide all necessary tools. The steps can be formally specified so that parameters can be automatically controlled and the environment can be updated more easily.Studies in health technology and informatics 02/2005; 116:367-72.