Research: Cincinnati Children's Hospital Medical CenterCincinnati Children's Hospital Medical Center · Division of Critical Care MedicineUSA · Cincinnati
Research: RAND CorporationRAND CorporationUSA · Arlington
Research: University of California, San DiegoUniversity of California, San Diego · Department of MedicineUSA · San Diego
Article: Transition From Pediatric to Adult Care for Youth Diagnosed With Type 1 Diabetes in Adolescence.Debra S Lotstein, Michael Seid, Georgeanna Klingensmith, Doug Case, Jean M Lawrence, Catherine Pihoker, Dana Dabelea, Elizabeth J Mayer-Davis, Lisa K Gilliam, Sarah Corathers, Giuseppina Imperatore, Lawrence Dolan, Andrea Anderson, Ronny A Bell, Beth Waitzfelder[show abstract] [hide abstract]
ABSTRACT: OBJECTIVE:Youth with type 1 diabetes mellitus are at risk for poor glycemic control as they age into adulthood. The aim of this study was to describe sociodemographic and clinical correlates of poor glycemic control associated with the transfer of care from pediatric to adult diabetes providers among a cohort of youth with type 1 diabetes diagnosed in adolescence.METHODS:Analyses included 185 adolescent participants with recently diagnosed type 1 diabetes in the SEARCH for Diabetes in Youth Study with pediatric care at baseline who were age ≥18 years at follow-up. Demographic and clinical factors were measured by survey and laboratory results. Survival analysis was used to estimate the age of transition. Logistic regression analysis assessed the association of demographic and clinical factors with the transition of care and poor glycemic control at follow-up.RESULTS:Fifty-seven percent of participants had transitioned to adult diabetes care providers by the follow-up visit. The estimated median age of transition of care was 20.1 years (95% confidence interval 19.8-20.4). Older age, lower baseline glycosylated hemoglobin, and less parental education were independently associated with increased odds of transition. The odds of poor glycemic control at follow-up were 2.5 times higher for participants who transitioned to adult care compared with those who remained in pediatric care.CONCLUSIONS:Transferring from pediatric to adult care, experienced by more than half the sample, was associated with an increased risk of poor glycemic control at follow-up. These findings suggest that young adults need additional support when moving to adult care.PEDIATRICS 03/2013; · 4.47 Impact Factor
Article: Is adolescents' religious coping with cystic fibrosis associated with the rate of decline in pulmonary function?-A preliminary study.[show abstract] [hide abstract]
ABSTRACT: Religious coping is associated with health outcomes in adolescents with chronic disease. Identifying potentially modifiable spiritual factors is important for improving health outcomes. The purpose of this study was to determine if associations exist between rate of change in pulmonary function and subsequent religious coping by adolescents with cystic fibrosis (CF). Retrospective cohort design employing the Brief R-COPE and calculated decline in lung function over a three-year period were utilized. Data were obtained for 28 adolescents; median age 13.5 years. Use of pleading or negative religious coping was associated with a worse clinical trajectory. Pleading may be ineffective as disease progression is modifiable through adherence to evidence-based treatments. Given established relationships of religious coping with general coping, the effects of declining pulmonary function may be broader. Changes in pulmonary function suggest opportunities for chaplains to explore options to cognitively reframe negative religious coping.Journal of Health Care Chaplaincy 01/2013; 19(1):33-42.
Article: "I Honestly Believe God Keeps me Healthy so I Can Take Care of My Child": Parental Use of Faith Related to Treatment Adherence.[show abstract] [hide abstract]
ABSTRACT: A limited number of studies address parental faith and its relationship to their children's health. Using cystic fibrosis as a disease exemplar in which religion/spirituality have been shown to play a role and parental health behaviors (adherence to their child's daily recommended home treatments) are important, this study explored whether parents with different levels of adherence would describe use of faith differently. Twenty-five interviews were completed and analyzed using grounded theory methodology. Some parents described no relationship between faith and treatment adherence. However, of those who did, higher-adherence parents believed God empowered them to care for their child and they used prayer to change themselves, while lower-adherence parents described trusting God to care for their child and used prayer to change God. Clinical implications for chaplains' differential engagement with parents are presented.Journal of Health Care Chaplaincy 01/2013; 19(2):66-78.
Article: Disclosure and Self-Report of Emotional, Social, and Physical Health in Children and Adolescents With Chronic Pain--A Qualitative Study of PROMIS Pediatric Measures.C Jeff Jacobson, Jennifer E Farrell, Susmita Kashikar-Zuck, Michael Seid, Emily Verkamp, Esi Morgan Dewitt[show abstract] [hide abstract]
ABSTRACT: OBJECTIVES: To examine the content validity of the Patient-Reported Outcomes Measurement Information System pediatric measures, including the pain interference scale, among children and adolescents (aged 8-18 years) who experience chronic pain. To describe children's understandings of the health domain constructs and elucidate verbal and conceptual aspects of self-reported pain-related functioning, which shape disclosure and reporting. METHODS: 34 children and youth with diagnoses of juvenile idiopathic arthritis or noninflammatory chronic pain completed semistructured and cognitive interviews exploring the meaning, experience, and expression of up to 4 of the Patient-Reported Outcomes Measurement Information System pediatric domains: anger, anxiety, depressive symptoms, fatigue, pain interference, and peer relationships. Team-based thematic and content analyses were conducted. RESULTS: Clear verbal and social-cognitive differences were observed in representations and accounts of the domain-experiences across age-groups, but we noted little, if any, evidence of problems with content validity. CONCLUSIONS: Findings suggest the importance of a rigorous developmental approach for understanding the verbal and cognitive dimensions of pediatric self-reports and patient-reported outcomes.Journal of Pediatric Psychology 09/2012; · 2.91 Impact Factor
Article: What's in a name generator? Choosing the right name generators for social network surveys in healthcare quality and safety research.Ronald S Burt, David O Meltzer, Michael Seid, Amy Borgert, Jeanette W Chung, Richard B Colletti, George Dellal, Stacy A Kahn, Heather C Kaplan, Laura E Peterson, Peter Margolis[show abstract] [hide abstract]
ABSTRACT: BACKGROUND: Interest in the use of social network analysis (SNA) in healthcare research has increased, but there has been little methodological research on how to choose the name generators that are often used to collect primary data on the social connection between individuals for SNA. OBJECTIVE: We sought to determine a minimum set of name generators sufficient to distinguish the social networks of a target population of physicians active in quality improvement (QI). METHODS: We conducted a pilot survey including 8 name generators in a convenience sample of 25 physicians active in QI to characterize their social networks. We used multidimensional scaling to determine what subset of these name generators was needed to distinguish these social networks. RESULTS: We found that some physicians maintain a social network organized around a specific colleague who performed multiple roles while others maintained highly differentiated networks. We found that a set of 5 of the 8 name generators we used was needed to distinguish the networks of these physicians. CONCLUSIONS: Beyond methodology for selecting name generators, our findings suggest that QI networks may require 5 or more generators to elicit valid sets of relevant actors and relations in this target population.BMJ quality & safety 09/2012;