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    ABSTRACT: This article challenges the dominance of a rupture model for understanding how we live day-to-day with life-threatening illness and the prospect of death. It argues that this model acts as a key interpretive framework for understanding dying and its related experiences. As a result, a rupture model upholds a normative and inherently crisis-based view of severe ill-health that reifies dying as an experience which exists outside of, and somehow transformatively beyond, everyday matters of ordinary life. These matters include the minutiae of daily experience which inform and shape our lived identities - as individuals and as relational selves. Drawing primarily on interview data from two family case studies that have contributed to an ethnographic project exploring family experiences of living with life-threatening illness, it will show how mundane, daily life is integral to understanding the ways in which families are produced and able to maintain a sense of continuity during circumstances of impending death. The analysis presented here moves analytical understanding of dying experience towards a theory of how individuals and families 'know' and engage with so-called 'big' life events and experiences. In this way, my study helps generate a novel and more inclusive way of understanding living with life-threatening/limiting illness.
    Mortality 08/2013; 18(3):251-269. DOI:10.1080/13576275.2013.819490
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    ABSTRACT: There has been considerable debate about the future sustainability of pension provision and, in particular, the precarious position of many female pensioners. The reasons for women's lower participation rates in private pensions than men's require greater investigation. Using the General Lifestyle Survey (GLF) 2008, this article examines the impact of various characteristics on the likelihood of contributing to a private pension, such as educational attainments, income, occupational group, full-time/part-time status, and whether an individual has any dependent children. It shows that these characteristics play an important role in access to private pensions. Finally, it suggests that strategies to alleviate disadvantages must take into account the complex circumstances that individuals experience throughout the life course, which result in gendered pension provision.
    Journal of Aging & Social Policy 07/2013; 25(3):197-217. DOI:10.1080/08959420.2013.791783
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    ABSTRACT: AimsTo explore if and how information about a transition to a palliative care approach was communicated to patients recently discharged from hospital and who fulfilled standardized criteria for palliative care need. Background Palliative care philosophy and, more recently, UK palliative care policy, endorse a context of open' awareness, where all parties openly acknowledge that the patient's death is approaching. The perceived benefits of making the patient aware of their prognosis encompass a variety of planning activities, which mean that death, when it occurs, is arguably more in keeping with the wishes of the patient. DesignA qualitative inductive interview study conducted in 2010-2011. Methods Fifteen semi-structured interviews were conducted with 15 patients and 3 family carers. All patients were identified as having palliative care needs according to standardized criteria, 3-6months after discharge from hospital. A thematic analysis was undertaken. FindingsContrary to the professed ideal of open' awareness, some participants were only partially aware and others wholly unaware that they were likely to be approaching the end-of-life. Those identified as unaware were over 85. Participants displayed a reluctance to acquire knowledge which would require them to face the imminence of death. Conclusion Philosophy and policy aside, people do not always conform to the autonomy paradigm of a self-directed life followed by a self-directed death.
    Journal of Advanced Nursing 04/2013; 69(12). DOI:10.1111/jan.12151
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    ABSTRACT: Men's involvement in prenatal screening is becoming increasingly important. However, despite the potentially significant role of fathers in haemoglobinopathy screening, their participation is under researched. Furthermore, the portrayal of Black and minority ethnic (BME) fathers tends to be based on persisting stereotypes of men as either absentee parents with limited roles in screening or as controlling decision-makers. To describe the influence of ethnicity and gender on the process of participation of men in antenatal screening for sickle cell and thalassaemia. A qualitative study, using in-depth interviews and focus groups with 22 pregnant women from a range of socio-economic and ethnic backgrounds, 16 male partners and 15 midwives in a northern city in the UK. Men from BME groups take a pragmatic and equitable role in screening with their partners. White British men on the other hand, while willing to participate in screening, take a more casual view of their own direct participation. Accounts from hospital midwives supported these findings. While acknowledging the importance of material connections between certain BME groups and blood disorders, two key issues are raised. First, BME men's involvement contribute a challenge towards existing assumptions often made about BME fathers. Second, White British men's participation can be useful in determining the genetic status of the foetus and therefore their role should not be neglected. Screening research and practice need to broaden out their focus on issues of gender, ethnicity and screening.
    Ethnicity and Health 08/2011; 16(4-5):327-41. DOI:10.1080/13557858.2010.531196
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    ABSTRACT: It is increasingly recognised that land degradation monitoring and assessment can benefit from incorporating multiple sources of knowledge, using a variety of methods at different scales, including the perspectives of researchers, land managers and other stakeholders. However, the knowledge and methods required to achieve this are often dispersed across individuals and organisations at different levels and locations. Appropriate knowledge management mechanisms are therefore required to more efficiently harness these different sources of knowledge and facilitate their broader dissemination and application. This paper examines what knowledge is, how it is generated and explores how it may be stored, transferred and exchanged between knowledge producers and users before it is applied to monitor and assess land degradation at the local scale. It suggests that knowledge management can also benefit from the development of mechanisms that promote changes in understanding and efficient means of accessing and/or brokering knowledge. Broadly, these processes for knowledge management can (i) help identify and share good practices and build capacity for land degradation monitoring at different scales and in different contexts and (ii) create knowledge networks to share lessons learned and monitoring data among and between different stakeholders, scales and locations. Copyright © 2011 John Wiley & Sons, Ltd.
    Land Degradation and Development 06/2011; 24(4). DOI:10.1002/ldr.1124
  • Children Behaving Badly?: Peer Violence between Children and Young People, 04/2011: pages 197 - 215; , ISBN: 9780470976586
  • Children Behaving Badly?: Peer Violence between Children and Young People, 04/2011: pages 71 - 84; , ISBN: 9780470976586
  • Children Behaving Badly?: Peer Violence between Children and Young People, 04/2011: pages 103 - 120; , ISBN: 9780470976586
  • Children Behaving Badly?: Peer Violence between Children and Young People, 04/2011: pages 121 - 135; , ISBN: 9780470976586
  • Children Behaving Badly?: Peer Violence between Children and Young People, 04/2011: pages 181 - 195; , ISBN: 9780470976586
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